Please allow me to introduce myself

Please feel free to read, share your thoughts, your stories and connect with others!
Claudine
Posts: 385
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Please allow me to introduce myself

Postby Claudine » Fri Dec 20, 2019 10:42 am

Ugh I'm really sorry about the new met. But this treatment sounds promising, I hope it works for you! C'mon CRISPR technology, hurry up we need you!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 4.4
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

MetastaticEquilibria
Posts: 74
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: Please allow me to introduce myself

Postby MetastaticEquilibria » Fri Dec 20, 2019 9:17 pm

Claudine wrote:Ugh I'm really sorry about the new met. But this treatment sounds promising, I hope it works for you! C'mon CRISPR technology, hurry up we need you!


Yes, we could all definitely use some of those miracle treatments that seem to be perpetually right around the corner. Let’s turn the corner in 2020!
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

User avatar
CRguy
Posts: 10179
Joined: Sun Feb 10, 2008 6:00 pm

Re: Please allow me to introduce myself

Postby CRguy » Fri Dec 20, 2019 10:29 pm

Hey MetastaticEquilibria

sending best wishes
MEGA +++++POSI VIBES
and ......

I do not see anyone here who actually commented on your topic title ...
" Please allow me to introduce myself "

SO as an old rock head from WAY back

" Pleased to meet you
Hope you guess my name
But what's puzzling you
Is the nature of my game "


The nature of OUR game is kicking colorectal ASS
back to the last millenium !!!!!! :twisted:

WORD bro' !!!!

Kickin' ass and takin' names
with you on the Journey

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

MetastaticEquilibria
Posts: 74
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: Please allow me to introduce myself

Postby MetastaticEquilibria » Tue Dec 24, 2019 7:30 pm

Thanks for the vibes, CRGuy!

There must be some kind of way out here,
Said the Joker to the Thief...
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

User avatar
CRguy
Posts: 10179
Joined: Sun Feb 10, 2008 6:00 pm

Re: Please allow me to introduce myself

Postby CRguy » Tue Dec 24, 2019 11:25 pm

There's too much confusion
I can't get no relief…

:mrgreen: :mrgreen: :mrgreen:
game on bro'
you just chose my all time favorite Hendrix classic

listen to the first few bars intro
THAT is gold !!!!! and epic Hendrix

YES I know, Dylan wrote it ... BUTT ....
Jimi LIVED it and brought it to life ...
WORD !

When I was in high school I played with a guy who was a Hendrix freak
so I did my best Mitch Mitchell drums to back him.

We peeled a lotta paint off the plaster and were both electronic geeks back then,
and wired up a whole lotta tech modules. Other hiskulers thought we were weird
We loved IT !

Cheers buddy
CRguy

(( P.S. ... " He was drinking for diversion
He was thinking for himself " .... just 'cos I cross almost all musical genres :shock: :mrgreen: )
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

MetastaticEquilibria
Posts: 74
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: Please allow me to introduce myself

Postby MetastaticEquilibria » Wed Dec 25, 2019 5:35 am

CRguy wrote:
There's too much confusion
I can't get no relief…

:mrgreen: :mrgreen: :mrgreen:
game on bro'
you just chose my all time favorite Hendrix classic

listen to the first few bars intro
THAT is gold !!!!! and epic Hendrix

YES I know, Dylan wrote it ... BUTT ....
Jimi LIVED it and brought it to life ...
WORD !


My favorite Hendrix, and one of my all-time favorites period, too. I think even Dylan admitted that Hendrix made it his own song.

When I was in high school I played with a guy who was a Hendrix freak so I did my best Mitch Mitchell drums to back him.

We peeled a lotta paint off the plaster and were both electronic geeks back then,
and wired up a whole lotta tech modules. Other hiskulers thought we were weird
We loved IT !


Were you using doing music with it? What kind of stuff?

I was into electronics as a kid too, though did not have a musical bone in my body. Did enjoy, for yucks, hooking up the TV to the stereo like an oscilloscope, with left and right speaker channels driving the vertical and horizontal coils on the CRT. Dark Side of the Moon made for some particularly good light shows as I recall.

(( P.S. ... " He was drinking for diversion
He was thinking for himself " .... just 'cos I cross almost all musical genres :shock: :mrgreen: )


Another well-worn album from the soundtrack to my hippie childhood.

“Oh they used to laugh at me
When I refused to ride
On all those double-decker buses
All because there was no driver on the top“

(Which I now learn was also a remake, like All Along the Watchtower.)
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

User avatar
CRguy
Posts: 10179
Joined: Sun Feb 10, 2008 6:00 pm

Re: Please allow me to introduce myself

Postby CRguy » Thu Dec 26, 2019 10:42 pm

Were you using doing music with it? What kind of stuff?

using as in self medicating with back alley medicinals ? :shock:
actually NO, we were a brew crew and did no drugs at all,
beer after all is a wholesome natural nutritional product :mrgreen:
I was into electronics as a kid too, though did not have a musical bone in my body. Did enjoy, for yucks, hooking up the TV to the stereo like an oscilloscope, with left and right speaker channels driving the vertical and horizontal coils on the CRT. Dark Side of the Moon made for some particularly good light shows as I recall.

That TV trick would be a blast ... well done my friend !!!
... BUTT ... Smoke on the Water probably would have been a bad omen for hotwiring your TV :shock: :twisted: :mrgreen:

We built a lotta stuff from Popular Electronics / Radio Electronics / Southwest Tech kit modules and schematics.
fuzz, wah-wah, mixers, BIG screaming amps, a theremin :shock:
Voice of the Theater knock off stacks ... all from scratch with discrete components.
Never saw an IC until we started messing with the E-mu Systems modules, which used plugin epoxy potted sub-modules.

Those were the crazy days and wild stuff that our youthful memories are made of !!!!

Cheers buddy
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 17 guests