So obviously, my question has to do with FAP and pregnancy. Bit of some background about me--I'm 29 was diagnosed with FAP when I was 11, had surgery when I was 14 and with the exception of two not-so-great check-ups, I haven't had any problems or difficulties. I get checked up every year and whatever polyps are found in my J-pouch and duodenum, are removed. Also, I take Sulindac daily and have done so for several years now.
After going round and round with my husband, having looked into adoption--even starting the homestudy process, we have decided to have a child ourselves and naturally. I have...I suppose you can say moral issues with IVF--I just...well, if my parents had known my mom (died of metastasized CC when she was 46), if they had FAP 30 years ago and went with IVF, I wouldn't be here today. I know the arguments for it--and believe me when I say I've gone through them all but this is something that I'm not going to suddenly going to be okay with. This particular water is too murky for me to wade into. And while I'm pro-choice, when it comes to my situation, I'm adamantly against abortion.
Tomorrow, I'm meeting with my OBGYN, get my IUD removed and next week, I'm seeing my GI about concerns with getting pregnant with FAP--what a pregnancy will can, the possibilities and what not. Lucky for me, my GI has had a few patients with FAP--he was involved in research down in Irvine but he only has had one patient with FAP who I believed was diagnosed when she was pregnant so he doesn't exactly have first hand experience with a pregnancy involving FAP. As for my other doctors, I'm their first patient with FAP. (Anybody else out there that get those wide-eyed looks from doctors the first time you meet them?)
My question is to all you mom and dads with FAP--regardless of how your kids were conceived, what were your pregnancies like? Any troubles with sudden issues like desmoid tumors? For those moms out there, Nutritional concerns? How bad was your morning sickness? That is, if you had morning sickness, was it so extreme that there were issues with hydration? I ask because the one time I caught a stomach bug, I ended up in the ER within two hours b/c I was near shock from dehydration. If you happened to take Sulindac or Celebrex (I think they are similiar drugs), were you able to take it through your pregnancy/breast feeding? I'm sure there are more questions but I can't think of them right now.
Oh, by the way--I'm all for discussion but for those of you who don't agree with my decision to have a child--please keep it to yourself. Trust me when I say, I've heard it all from others already and been there done that with upsetting conversations.