I've got an appt tomorrow (Tuesday) and would like to go in armed with some specific questions. I'm hoping you guys have some recommendations for me.
I am still working out the best way to manage post-LAR bowel issues. I seem to have established a pattern in which I can go 2-3 days with no bathroom activity (or maybe just a few trips, nothing eventful), after which I have a clustering day that leaves me very unhappy. I can live with multiple trips to the bathroom, but the irritation and resulting pain is really getting to me. Calmoseptine helps most of the time, but every few weeks I'll end up so sore that it hurts to walk. The discomfort usually peaks in the evening, at which point I can slather on the Calmoseptine and take a Vicodin and get through the night, with significant relief in the morning. Vicodin works really well for me - great pain relief. Sometimes, though, I've got to deal with this pain in the middle of the day, and I can't take something that makes me sleepy.
I'm talking about situations where ibuprofen or acetaminophen just don't do the job. I want to ask my doctor for an alternative, and I find that it works best for me if I can ask about something specific, rather than just going in there with a generic request for help. I know some people have good results with Toradol. Any other ideas?
Of course, the longer term question is how and whether I want to continue this cycle, but for now I'm not quite ready to give up on finding a bowel management strategy that will work (and yes, I've tried the MD Anderson protocol).
Beth dx @age 42, Jan '11
RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13 http://www.mysemicolon.net