frank2001 wrote:Thank you all for your comments regarding ileostomy reversal...I have had my bag on since March 11 and was hoping to have it reversed on June 11....but oncologist wants me to continue with my Chemo for a couple of months longer. Not something I was very happy with but going along with his advice...I am very happy I was sent this site from the American Cancer S. ...I have always had a million questions since I was diagonosed with Rectal Cancer back in Nov 07...and its good to come to this forum to ask or post a question....Thank you all for you comments..Frank
2yng wrote:frank2001 wrote:Thank you all for your comments regarding ileostomy reversal...I have had my bag on since March 11 and was hoping to have it reversed on June 11....but oncologist wants me to continue with my Chemo for a couple of months longer. Not something I was very happy with but going along with his advice...I am very happy I was sent this site from the American Cancer S. ...I have always had a million questions since I was diagonosed with Rectal Cancer back in Nov 07...and its good to come to this forum to ask or post a question....Thank you all for you comments..Frank
It sounds like we are in the same boat! Im having my reversal June 10 th '08! Ive had my pouch since Feb. Im too going through prevenative chemo now(folfox) and on mon I had to nix my treatment due to a bit low white count! So Hopefully all will go well and get it to be back in a normal range. I too was dx in Nov 07...I was 32 then. My oncologist is giving me week off my chemo after my surgery and then back at it! I hope that's enough time? Im just concerned with bowel issues too....I am passing itty bitty (like pea size) of stool even w/my bag... I believe God's preparing my body to have normal function. I feel that "urgency" and can "hold" it ...and my surgeon says that's a good sign. WEll best of luck to you too.
PammySue_51 wrote:I have a colostomy (since August 2006) and not an ileostomy, but I think I'll keep it. I have never been off of chemo in 18 months and it's much easier to deal with the diarrhea in a bag. For almost a year I was obsessed with the thoughts of getting it reversed as my surgeon initially said he would NEVER reverse it as I had been through too much already. So...when he said we would talk about it when chemo was completed I was thrilled. Now...about one year later I have adjusted to it and it is part of my "new normal." I don't think I want to take the chance at this point of dealing with what COULD happen with a reversal. I know for most people reversals turn out just fine. I just don't want to be one of those people where it doesn't turn out fine. While I really don't like having "the bag" for some of us it truly is a quality of life thing.
Good luck to all of you with reversals. I hope all goes well with you and I must admit...I'm a bit envious but I'm also a wimp and don't want to put myself through any more trauma than I already have.
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