i feel a bit of a fraud to be posting on here but here goes, i was just wondering if anyone can help me, i live in the uk and have had numerous health problems all starting last june, i found a lump in my neck and a lump in my groin i attended the docs concerned who told it was an infection and would go away in time the same year 2008 in dec i went back to doc as lumps had grown and i had more in my neck and groin he weighed me i was 13 stone ( about 170lb i think) anyway he refferred me to see ear nose and throat speacialist who did a scan 2 of the 5 swollen came back comcerning they biopsied i got a reactive result but told that one could be clear the others may not by this time i weighed 140lb and my symptoms were getting worse more lumps joint pain, easy bruising and night sweats adn severe fatigue. i was then sent to see a thyroid specialist who told me my thyroid was fine but was concerned by my lumps in my groin which now were 5cm and 3cm she sent me to a blood specialist who said he thought i had leaukemia or lymphoma and they biopsied both lumps and again they were reactive they have done every blood test possible and ruled out HIV, lupus etc inc infections and viruses i had a caeliac test as my weight was 100lb and that was negative they decided to do a colonoscopy which was clear for crohns disease and inflammitary bowel disease but they found white spots in my colon the specialist said he didnt know what they were and had never seen them before i googled them when i got back and can only find minimal info and mostly research. more lymph nodes are swelling in my groin and neck and i am terrified that all these other problems are linked to something more serious in my bowel. they biopsied the white spots and i am still awaiting results ( as uk takes forever to do anything health wise) I am 23 years old with two children aged 4 and 2 and i was hinging all my hopes on the fact it is almost unknown in my age group then i stumbled upon this site. the fear of cancer for anyone is too very very real but especially when i could potentially leave behind children taht haven't even grown up. i was so prepared to be told i had cancer of the blood or lymphatic system i googled everything i could preparing myself mentally for it then this gets thrown into the mix and its so concerning that this 50 year old (at least) specialist has never seen anything like it before. i am still struggling with my weight having to take in 4000 calories a day to try and maintain my weight to 105lbs but as soon as i stop and eat normally i drop 2 - 3lb a day. if anybody has any experience of this please do post and thanks for reading the essay
kim xx