Hi everyone,
My blood was drawn more than a month ago on 11/27, for the HNPCC genetic test, and sent to Myriad. I think Myriad is the only company doing this particular test now. (not sure though)
The runaround begins: First the paperwork, the "orders" sent in w/the blood sample were incorrect, so the process was delayed 10+ days. A rep at Myriad told me that once they got the correct "orders" from the doctor, it generally would take one week for Coventry to give a "YAY" or a "NAY" to pay for the test.
As of today, still nothing has been done... supposedly Coventry asked the doc's office for more information (to justify the test) on 12/14... two freaking damn weeks ago - and that has not been fixed. I'm making phone calls, sending emails, begging/pleading/being firm and demanding - all of the above - and getting more and more pissed off... at the doctor's office mostly (and insurance too though.)
Do I even want or need this test? What DIFFERENCE will it even make? We clearly do not have $2000 ourselves to pay for this, but we could perhaps charge it on a credit card if desperate enough.
I think if I tested POSITIVE for the gene, then clearly I would demand more frequent (maybe yearly) c-scopes, regardless of symptoms or problems. I would also be more inclined to change my lifestyle, diet, drinking habits, etc. If polyps or anything malignant was ever found, I would probably opt for much more aggressive treatment or surgery. But if I test NEGATIVE, does that really mean I am at "less" risk... with my family history? My dad Dx at age 48, dead by age 52; his mother died in her 50's of stomach/colon cancer...
I'm frustrated. Back on 11/27 I fully expected to have at least "some" answers by the end of 2006. Even if Coventry is going to deny the test - I'd rather just KNOW, and know RIGHT NOW.
Any suggestions on the value, or benefit, of knowing the genetic test results? Or the negative aspects of being tested?
Thank you for letting me vent.
Michelle