Cured it is then !

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stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Cured it is then !

Postby stu » Wed Feb 03, 2021 4:13 am

Just realised my mum crossed the medical finish line ! Five years since her last surgery !

It has taken her a long time to get here .
But she has arrived !

Not that she has even realised I will enlighten her later .

Just a little encouragement for all in treatment !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Jess83
Posts: 37
Joined: Sun Dec 02, 2012 7:06 am

Re: Cured it is then !

Postby Jess83 » Wed Feb 03, 2021 5:02 am

That’s awesome news!!! Congratulations to your mum!!!! :D
2012 - Stage 1, 29 Australia
18mm Polyp - T1 NX M0
May 13 - TEMS procedure, Clear margins!!!
Dec 20 - 35mm tumor next to original resection
Stage 4 with met to adrenal gland
Jan 21 - Adrenal gland removed
3 rounds of FOLFOX
March 21 - 6 weeks of chemo/radiation
April/May 21 - 3 rounds FOLFOX
June 21 - ULAR, loop ileostomy & removal of ovaries - leak, drained, reoccurred, drained again.
August 21 - 6 rounds FOLFOX
November 21 - Clear PET Scan - NED!
December 21 - Ileostomy reversal

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Cured it is then !

Postby Gravelyguy » Wed Feb 03, 2021 10:37 am

That is awesome news Stu! Congrats to your mom!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Cured it is then !

Postby claudine » Wed Feb 03, 2021 11:18 am

So happy for both of you (and family and friends) :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: Cured it is then !

Postby boxhill » Wed Feb 03, 2021 11:34 am

Wonderful!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED

Nor Cal
Posts: 89
Joined: Sun Dec 06, 2020 8:18 pm

Re: Cured it is then !

Postby Nor Cal » Wed Feb 03, 2021 9:50 pm

Congratulations! Great news
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. CEA 120.
BRAF+ TMB 5% MSS TDL1-1%
July 2020 - Present: 55 cycles chemo (All the various 5-FU regimens)
December 2020 - February 2021 Y90 Radioembolization, Chemoembolization x2

User avatar
mobrouser
Posts: 174
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Cured it is then !

Postby mobrouser » Wed Feb 03, 2021 10:25 pm

Fabulous news to read. Have a great celebration!
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Cured it is then !

Postby Punky44 » Thu Feb 04, 2021 2:03 am

Yay!!! Congrats mom and Stu!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Cured it is then !

Postby ginabeewell » Fri Feb 05, 2021 12:03 am

Always so happy to see proof of what’s possible! And your mom is one of the people I like to cheer on the most. : )

Congrats to both of you!!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

utahgal7
Posts: 200
Joined: Fri Sep 11, 2020 12:04 pm

Re: Cured it is then !

Postby utahgal7 » Fri Feb 05, 2021 8:55 am

That's fantastic news! So happy for your mum and your family. This news gives hope to me and to others! If your mum can do it, all of us here on this forum can too! Thank you for sharing.

Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Cured it is then !

Postby DarknessEmbraced » Fri Feb 05, 2021 1:39 pm

Congratulations to your Mom!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Siti
Posts: 269
Joined: Thu Aug 01, 2019 10:58 am

Re: Cured it is then !

Postby Siti » Fri Feb 05, 2021 2:47 pm

Your mom is amazing and so are you! Thank you for being the light on our darkest days.
DH (54) DX on 5/7/19
Sigmoid|G3|LN:30/31|MSS|WT KRAS, NRAS, BRAF
7/19 PET distant LN para-aorta neck hip (0.5-1.5cm)
7/19 Lap resection
26/8 to 20/12/19 CAPEOX+Bev 7x
6/11/19 CT 3 cycle LN shrunk
1/20 Cap+Bev
4/20 TS-1+Bev due to bad HFS
NED 4 years
8/23 PET recurrence chest LN growing since Feb. CEA May(4.5>5.1>5.9)
9/23 Stopped Bev, CEA Sept(8.7) Radio 17x
11/23 PET 1+ supraclavicular LN, CEA (3.4>2.5)
12/23 Lymphadenectomy
1/24 Narrow margins, 1/5 +LN, 1.4cm +tissue, TMB (19)

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Cured it is then !

Postby stu » Sun Feb 07, 2021 4:18 am

Thank you so much . She sends each and everyone of you her very best wishes . She remains committed to pushing those stage 4 stats further down the road and delighted others are able to do the same .
The pipeline has been delivering new treatment options over the last five years and collectively it gives such hope !

Best foot forward !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

shaina
Posts: 13
Joined: Mon Oct 12, 2020 11:11 am
Facebook Username: shaina.leskin

Re: Cured it is then !

Postby shaina » Sun Feb 07, 2021 4:27 am

Great news! There is definitely hope for us Stage IV b-ers! Good luck with everything in the future, and enjoy life as it comes. I posted before, if you Mum is up to it, there's a marvellous workout program for 50 plus age group, called "Fabulous 50s" which keeps me strong and relatively healthy and fit. Your Mum may enjoy it!

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Cured it is then !

Postby stu » Sun Feb 07, 2021 5:39 am

Thank you Shaina , I will look it up right now and pass it onto her . She has always been very active and I do credit that to the fact she has been well for all the treatment and surgery she has been able to do . I think that would really work for her .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


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