Recommended Supplements?

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ranhanssen
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Recommended Supplements?

Postby ranhanssen » Sat Nov 21, 2020 12:04 am

Hi All -

I'm hoping to learn about what supplements others are taking. What do you recommend taking and where do you source them from / what name brand is reliable? I'm new to all of this so just trying to order up so I can start taking at least a few!

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beach sunrise
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Re: Recommended Supplements?

Postby beach sunrise » Sat Nov 21, 2020 10:31 am

Good morning, I would say get with a naturopath to find out what you really need. For starters there are two things that might help keep your immune system strong which is very important in this fight until you can get with an ND. They are: Turkey Tail Mushroom (I am currently taking RealMushroom brand), the hot water extracted and a high quality Beta Glucan (I take the immunodyne kind made by LCI company).
Last edited by beach sunrise on Sat Nov 21, 2020 12:55 pm, edited 1 time in total.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

utahgal7
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Joined: Fri Sep 11, 2020 12:04 pm

Re: Recommended Supplements?

Postby utahgal7 » Sat Nov 21, 2020 11:33 am

Hi,

I think that adequate folate level and adequate vitamin d level is important. I would echo what beach sunrise said about Turkey Tail mushroom. Also, I have read that reishi mushroom is good for immune system. In addition, I think it could be important to suppress inflammation in the body, a bioavailable turmeric supplement could help with inflammation.

As far as supplement brands, I've been told that Life Extension supplements are really good. However, they are expensive. Gaia Herbs were recommended as well.

Of course you would want to discuss with your doctor or other health professional before using supplements. I know some doctors are against supplements, so good luck with that.
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
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beach sunrise
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Re: Recommended Supplements?

Postby beach sunrise » Sat Nov 21, 2020 11:44 am

Yes, inflammation is one driver of cancer. Tumeric is potent at least 800mg caps taking 4 caps 2hrs apart TID.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Koreysue
Posts: 258
Joined: Mon Apr 30, 2018 2:36 pm

Re: Recommended Supplements?

Postby Koreysue » Sat Nov 21, 2020 9:45 pm

I agree with the above comments to try to see a naturopath for dosing, brands ect. I saw a naturopathic oncologist alongside my regular oncologist.
I take tumeric, broccoli sprouts, vit D, and a mushroom trio
Ksue
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan

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Green Tea
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Re: Recommended Supplements?

Postby Green Tea » Sat Nov 21, 2020 11:42 pm

For supplements, I think it is important to specify the purpose for which you want to take supplements. There are supplements for all kinds of conditions, for example, for insomnia, for arthritis, for low energy level, for stress, for vitamin deficiency, for mental alertness, etc. You need to clearly specify why you would like to start taking supplements. A Naturopath Doctor (ND) would be able to help clarify things and put everything in perspective for you.

Every day I take about half a dozen supplements, but none of them are for cancer, per se. If I were to give my list of supplements, it wouldn't do much good unless I also mentioned why I am taking these supplements.

Also if you are starting to add supplements to your list of meds, either you or your doctor will need to check whether or not these are compatible with whatever else you are already taking. This includes both drugs/supplements and foods/beverages.

https://reference.medscape.com/drug-interactionchecker

zephyr
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Joined: Thu Aug 18, 2016 7:31 am

Re: Recommended Supplements?

Postby zephyr » Sun Nov 22, 2020 4:21 pm

Green Tea wrote:... if you are starting to add supplements to your list of meds, either you or your doctor will need to check whether or not these are compatible with whatever else you are already taking. This includes both drugs/supplements and foods/beverages.


Excellent point and, as other have also mentioned, seeing an ND or an Integrative Medicine doc is really important. You can't rely on what others are doing because everyone is different - their cancer is different, their medical history is different, their treatment, etc. You don't want to risk sabotaging your treatment. I'll give you an example that actually happened to me. Green tea (the tea, not the poster above :wink: ) is amazingly helpful for good health. There are lots of studies that back up that statement. However, if irinotecan is part of your treatment, green tea can result in increased toxicity. If you happen to be on iron supplements, green tea can reduce bioavailability. You really need to see someone who can look at the big picture and make recommendations. That said, MSK has an excellent site called About Herbs that is very helpful if you want information about specific herbs/supplements, and it often includes "Do Not Take If" and/or "Herb-Drug Interactions" sections.

https://www.mskcc.org/cancer-care/integrative-medicine/herbs/green-tea?msk_autocomplete_search_query_suggestions%5Bquery%5D=magnesium

If you can't find a naturopathic doc, preferably one certified in oncology, or an Integrative Medicine doc in your area or if you just don't feel comfortable going in, for whatever reason, you may want to consider joining Life Extensions and scheduling a consultation with one of their Wellness Specialists. I think you need to be a member to use the consult program, but I might be wrong. The membership is $50/yr and you get $50 in credit to apply to purchases. Maybe call first to make sure the Wellness consult program can still give you the guidance you need. It used to be that their Wellness Specialists were naturopathic docs. I wanted to see what the program was all about a few years ago so I scheduled a consult even though I was under the care of a naturopathic oncologist. They recommended pretty much the same protocol as my N.D.

https://www.lifeextension.com/about/wellness-specialists

I hope this helps.
Nov-2009 Early stage CRC, routine colonoscopy
2010-2014 F/U colonoscopies, all clear
Jun-2016 CRC during F/U colonoscopy, surgery, Stage 4, KRAS, MSS
Aug-2016-May-2018 Folfox, 5FU, Folfiri & Avastin
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Mar-2021 Forfiri/Avastin
Mar-2022 Ablation & Thoracotomy
Feb-2023 Folfiri & Avastin
Nov-2023 Xeloda & Avastin


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