Postby rachelfromnyc » Mon Sep 28, 2020 8:19 pm
Had a bit of a change in plan in that the surgeon said I'm to be off chemo until surgery but when I talked to my oncologist a few days later, she wanted me to do one more round. So that was last Friday. Going into surgery I will be off chemo for three weeks and off avastin for nine weeks. I'm so tired today. Probably the most tired I've been the day after disconnect so far. I had four work related calls which I was able to take, participate and sound coherent. But afterwards, I'd set an alarm and nap until the next one. Hoping to wake up tomorrow with more energy than today.
I have all of my presurgical appointments set. On Friday, I'll go in to get a full medical assessment which will assess my risk for surgery, anesthesia, etc. Then next Monday, I have an appointment with the stoma nurse. The surgeon said it's low probability but we have to be prepared anyway. Then two days before the surgery, I'll go in for a Covid swab. I'm not really scared or anxious about the surgery itself. Mostly it's the post surgery stuff that I think about. I've never stayed overnight in a hospital or had surgery before (unless you count Lasik). Also, the oncologist said the soonest I'd be back on chemo is two weeks after which would be five weeks off total, pre and post surgery, which I'm a little concened about. It'll be my longest break since starting last year. I also just want to look ahead and see what can be done about my lungs and lymph nodes. But one step at a time right?
Dx May '19, one month after 37th bday
5/19: 3.4 cm tumor in transverse colon, distant lymph nodes, innumerable lung nodules
Moderately differentiated invasive adenocarcinoma
MSS, TMB 7.9, BRAF/KRAS wild
6/19 - 9/19: Folfox
10/19 - 2 new tumors in liver, switch to Folfiri w/ Avastin
3/20 - liver tumors no longer seen, primary tumor 0.9 cm, continue Folfiri w/ Avastin