Onc appt

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Rikimaroo
Posts: 317
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Onc appt

Postby Rikimaroo » Fri Sep 04, 2020 5:01 pm

Hi Beach,

Overall very tolerable. The only issue I seem to have is stomach cramps/gas. It's not major, but can be a bit uncomfortable at times, but overall, feeling good. I just did blood work today for my avastin infusion next week, and also to check everything, I do this every 3 weeks. Maybe they can add avastin regimen to your xeloda, never heard of just xeloda only, but I am not sure.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri

User avatar
beach sunrise
Posts: 240
Joined: Thu Mar 05, 2020 7:14 pm

Re: Onc appt

Postby beach sunrise » Sat Sep 05, 2020 12:21 am

Good cramps/gas are not to bad, but of course that is a guy thing to say, ha.
I take multi-symptom imodium right before xeloda to avoid it. I would be so embarrassed to pass gas in front of anyone. I would have to blame it on my kids or husband.
I am on the ADAPT protocol plus extras (supplements) as of now. The xeloda is a game changer compared to the ole bag (nickname for the pump).
I hope your bloodwork results are great!
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"


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