GYN appt

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beach sunrise
Posts: 225
Joined: Thu Mar 05, 2020 7:14 pm

GYN appt

Postby beach sunrise » Mon Jul 13, 2020 9:58 am

Hi, I have a gyn appt today and was wondering if there is anything I need to discuss with her about cancer that she might not bring up or know alot about concerning my cancer? The only thing I can think of is discussing a hysterectomy?
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
9-22 CEA 8.6
9-28 CEA 8.5
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

User avatar
CRguy
Posts: 10231
Joined: Sun Feb 10, 2008 6:00 pm

Re: GYN appt

Postby CRguy » Mon Jul 13, 2020 12:55 pm

Maybe the after effects of radiation and chemo :
vaginal strictures / scarring / pain, hormonal changes / chemo induced menopause

these seem to be the major topics of discussion with many female members here
Hoping some others can chime in and give their thoughts for you

Best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 6101
Joined: Sun Apr 16, 2006 4:09 pm

Re: GYN appt

Postby Lee » Mon Jul 13, 2020 3:05 pm

Agree to what CR Guy wrote. My surgeon was nice enough to take out my female organs during my surgery. Radiation threw me into menopause with in the first week of radiation. But I was prepared. I already had a GYN tell me a few years prior that I should get everything out in 10 yrs. I suffered a miscarriage and that GYN had to go inside and removed the fetus. Shortly after that, we moved, and I never really had a chance to find out what he saw.

I have serious scaring inside my vagina, been told it is some of the worst a GYN has ever seen. Today I experience occasional bleeding in my vagina as a result of radiation damage. I have a permanent colostomy as a result of radiation damage.

Yes I would push for a hysterectomy, rectal cancer can met to that area. I believe that is why my surgeon agreed to do mine. Research was coming forward at that time that this cancer can spread to that area.

If you have any questions, fire away. Good luck,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
beach sunrise
Posts: 225
Joined: Thu Mar 05, 2020 7:14 pm

Re: GYN appt

Postby beach sunrise » Mon Jul 13, 2020 4:32 pm

Thanks you guys!!! I wish my surgeon had of done a hysterectomy during primary surgery. I talked with my gyn. She didn't recommend a hysterectomy as preventive because of the surgery I had that included vaginal wall reconstruction. She said we need to wait and will keep a very close watch on me every 6 mths. She is going to do an ultrasound on the 28th. She is doing genetic testing also. Nothing was mentioned about strictures, scarring and such so I will ask her in 2 wks about it.
Again, thank you so much. You guys gave me a super great start! I was very nervous and not informed enough for today but I have 2 more wks to ask about any concerns.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
9-22 CEA 8.6
9-28 CEA 8.5
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

User avatar
beach sunrise
Posts: 225
Joined: Thu Mar 05, 2020 7:14 pm

Re: GYN appt

Postby beach sunrise » Tue Jul 28, 2020 1:30 pm

Update: Thanks to you all I was more informed this visit with gyn. Ultrasound showed no tumors. Everything looked good, no strictures, scarring, nothing out of the normal for my age, Whew!!! Genetic testing for womens cancer was very low risk. Colorectal risk for mets however according to gyn is something we need to do an ultrasound for every 6 months for 3 yrs as of now.
Again Thank you Thank you for the info and advice to keep check on this.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
9-22 CEA 8.6
9-28 CEA 8.5
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"


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