3 year scan. Wish me luck!

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benben
Posts: 328
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

3 year scan. Wish me luck!

Postby benben » Tue Jul 07, 2020 1:24 pm

Hello CTALK folks.

Been a while since I've been active, but I just got back from my 3 year CT scan. Well Surgery was 4/16/17 and last chemo was 10/26/17 - So I'm presuming this is 3 years.
I haven't had much anxiety, but you know now waiting for results its creeping in a bit.

I've got so many plans and projects going on, I certainly hope the news is good! Building a house for one.
Took an Iceland trip at end of 2019 - amazing. Still biking tons, trying to LIVE as much as possible.

Well wishes to all,

Keeping my fingers crossed, wish me LUCK. From what I've read 3 years is a pretty big one. Of course 5 is even better :)

cheers.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/22 CT - NED (5 years!)
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beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: 3 year scan. Wish me luck!

Postby beach sunrise » Tue Jul 07, 2020 4:16 pm

Good luck!!! 3 yrs is awesome.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
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Zackattack
Posts: 49
Joined: Mon Jul 15, 2019 4:28 pm

Re: 3 year scan. Wish me luck!

Postby Zackattack » Tue Jul 07, 2020 10:02 pm

Good luck! Get some good results and share the positivity!
Colonoscopy due to occasional blood in stool.
DX: Rectal Cancer, 7-12-19 @ age 36, male
CEA Levels of 3.0, seems to be T1 at first glance (and hopefully forever?).
Moderately differentiated cells. 12 to 15cm from anal verge
7-26-19 --Dr. calls to advise upon rerunning pathology, sm3 depth...
TME surgery scheduled for 8/21/19
Successful surgery and feeling good so far
2 of 15 sampled Lymph nodes were cancer
Stage 3A T1cN1M0
CAPOX for 3 months finished Dec '19
Clear CAT Scan 1/6/20
Clear Colonscopy 6/18/20
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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: 3 year scan. Wish me luck!

Postby CRguy » Tue Jul 07, 2020 10:20 pm

benben wrote:From what I've read 3 years is a pretty big one. Of course 5 is even better :)
cheers.

Yup most mets and recurrences will show some signs within the first 3 years ... = ME !!!! :twisted:
SO, now that is just a bad memory in the rear view mirror !!!! :mrgreen:

YES, definitely keep on with vigilant monitoring for the next couple of years for sure.

Keep livin' LIFE LARGE !!!!
Best way to show CRC who is really the Boss

Cheers and Harmony on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
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Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: 3 year scan. Wish me luck!

Postby Lee » Wed Jul 08, 2020 6:08 pm

Swing chickens in your favor that the news is good.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
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boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: 3 year scan. Wish me luck!

Postby boxhill » Thu Jul 09, 2020 10:26 am

Keeping all appendages crossed for you. :D
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED
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NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: 3 year scan. Wish me luck!

Postby NHMike » Fri Jul 10, 2020 6:04 am

Hoping things go well for you.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 3 year scan. Wish me luck!

Postby DarknessEmbraced » Sat Jul 11, 2020 12:01 pm

I hope you get good scans!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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I_will_fight
Posts: 148
Joined: Mon Jun 29, 2020 3:38 pm

Re: 3 year scan. Wish me luck!

Postby I_will_fight » Sun Jul 12, 2020 3:42 pm

Good luck benben!
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT
07/23- Clear CT, normal markers.
09/23 - Negative Signatera
01/24 - Clear CT
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Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: 3 year scan. Wish me luck!

Postby Atoq » Mon Jul 13, 2020 2:24 am

Finger crossed and good luck!

Best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED
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Rikimaroo
Posts: 436
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: 3 year scan. Wish me luck!

Postby Rikimaroo » Mon Jul 13, 2020 9:58 am

Hoping for clear scan!! Good Luck!!
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.
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benben
Posts: 328
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: 3 year scan. Wish me luck!

Postby benben » Mon Jul 13, 2020 10:53 pm

Thanks All!

I have to admit, I'm really anxious.

Why? Cause I have not seen my results on my online charts yet.

In the past I've always gotten scan results the same night or at most a day later. Here we are 6 days post scan and I've not heard a peep.
Nothing on my online chart, no phone call, nada.

It really hit me hard with anxiety and effected my overall mood and demeanor. :(

I've at least calmed down some, but looks like I won't know for certain until my oncologist appointment on Thursday.

My GF says its most likely Coronavirus delays. Perhaps. I guess the last blood test I got I didn't get results until seeing the doc either, even though it was in the normal range at 2.3.

That was only a 3 day wait though.

I did have an echocardiogram done a couple months back and didn't get results back for several days either. The doctor called about 5 days after the test and gave good results with that one and the online results came in about a week later.

The hospital did get bought out by Providence and lots of changes have occurred as result as well. So who knows.


Still praying all is well..
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/22 CT - NED (5 years!)
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benben
Posts: 328
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: 3 year scan. Wish me luck!

Postby benben » Tue Jul 14, 2020 1:33 pm

I got something in my charts online today!

Image

Maybe someone was reading this thread. LOL


AHHH, what a relief.


Thanks to ALL for your well wishes. I feel like I now have the freedom to keep with my daily pursuits.


Keep the Faith! Hold on to Hope!


3yrs NED! :D :D :D
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/22 CT - NED (5 years!)
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I_will_fight
Posts: 148
Joined: Mon Jun 29, 2020 3:38 pm

Re: 3 year scan. Wish me luck!

Postby I_will_fight » Wed Jul 15, 2020 5:10 pm

benben wrote:I got something in my charts online today!

Image

Maybe someone was reading this thread. LOL


AHHH, what a relief.


Thanks to ALL for your well wishes. I feel like I now have the freedom to keep with my daily pursuits.


Keep the Faith! Hold on to Hope!


3yrs NED! :D :D :D


Wowowow!

Well done benben!
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT
07/23- Clear CT, normal markers.
09/23 - Negative Signatera
01/24 - Clear CT
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bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: 3 year scan. Wish me luck!

Postby bitchslapped » Thu Jul 16, 2020 12:19 pm

BS here chiming in benben. Congratulations on the good news!
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
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