Postby Rock_Robster » Mon Jun 29, 2020 12:31 am
Rikimaroo wrote:Rock did you get the vertical stealth or the one that you have to move your bag horizontal? How are you doing Rock since Ileo reversal? Glad to see your 6 months scans are good as well.
I am debating getting the stealth belt. I just want to conceal it a bit more, just this particular bag brand sticks out more.
Hi Riki,
I did get the vertical version (“Stingray”); my nurse suggested this as ileostomies really need to remain vertical (unlike colostomies). It’s a great product but not especially cheap - if we happen to have similar sizing I’d be happy to send you mine (well washed!) to try out!
Going very well thanks - yes I was very pleased with the scan results! Everything else is good - I’m 4 months post-reversal and generally have a pretty decent lifestyle. I’ve made a number of adjustments to my routine to make things workable, and about 80% of the time is seems to work. I must say working from home due to Covid has made things a lot easier in that regard.
Hope things are going well for you!
Cheers
Rob
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev
3/24 VAXINIA (CF33 + hNIS) trial