Hi, going in Monday for round 8 folfox6. Had discussion with onc about doing 4 more rounds of at least 5FU. He said no evidence was found for that protocol any more, 8 is it and I should just relax and see if/when cancer shows up again. Nothing to do but have patience and wait. Scan was clean last Monday but CEA was 11.4, down from 12. My thought is cancer is still just circling looking for place to set up camp to build a community then 4 more rounds gives a better chance of killing the micromets before they set up to make me stage IV (might be already, who knows). I do have a second opinion in the works but might not be soon enough, Idk. Anyone here still doing 12 rounds?
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"