Rectal cancer stage IV

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Caat55
Posts: 680
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Wed Mar 18, 2020 9:03 am

That’s good news. Stay healthy and well in these challenging times. I am schedule for colonoscopy in two weeks, my second since surgery, first since reversal.
Take care,
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
Atoq
Posts: 388
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Wed Mar 18, 2020 10:44 am

Caat55 wrote:That’s good news. Stay healthy and well in these challenging times. I am schedule for colonoscopy in two weeks, my second since surgery, first since reversal.
Take care,
Susan

Thanks! How are things where you live?
Good luck with the colonscopy, I did not get any painkiller or sedation with mine after surgery but it was not painful at all.

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

Lee
Posts: 6164
Joined: Sun Apr 16, 2006 4:09 pm

Re: Rectal cancer stage IV

Postby Lee » Wed Mar 18, 2020 10:46 am

Congratulation. 6 months is a milestone.

Beautiful picture.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

kiwiinoz
Posts: 1152
Joined: Thu Jan 03, 2013 11:44 pm

Re: Rectal cancer stage IV

Postby kiwiinoz » Wed Mar 18, 2020 4:53 pm

Loved the news, and loved the photos. Are you starting to think of cancer less now?
Do you run around those fields when it is not snowing? You live in a very beautiful place.
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

User avatar
Atoq
Posts: 388
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Wed Mar 18, 2020 5:15 pm

kiwiinoz wrote:Loved the news, and loved the photos. Are you starting to think of cancer less now?

Thanks! Actually, I think about cancer, but as part of life, I have accepted that I might get it back, but right now I am NED and fully enjoying that :D

kiwiinoz wrote:Do you run around those fields when it is not snowing? You live in a very beautiful place.


Yes, I love to run with and without snow, it is not so deep here and I have shoes with spikes. When I run in the fields though, my Garmin doesn't take in account the slippery terrain, the mud and the wind, so it sends me really mean comments like "training quality, poor" :wink:

How is it doing with your running? Do you have any competition in sight?

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

kiwiinoz
Posts: 1152
Joined: Thu Jan 03, 2013 11:44 pm

Re: Rectal cancer stage IV

Postby kiwiinoz » Wed Mar 18, 2020 11:04 pm

Hi Claudia,
Running has taken a bit of a back seat over the last 12 months. It was 6 years since diagnosis so about time for my personal life to be a bit more of a focus.
I had trips planned to Japan in May and Italy in June, which I have cancelled though.
I still run about 4 x a week about 40-50 km a week or so. The usual, a long run, speed work out, temp run, fartleks. I had 2 good friends move last year that I had been doing marathons with so I am looking for a few friends to run with but I live in about 2km from the CBD in Sydney in an expensive area with no kids (but I cute cat). Most of my friends live in the suburbs with kids and are all about 30 minutes drive from me so it makes it hard when I am looking to run with them.
What about you. How is your running? You still running your 5km at 4.15 pace wasn't it? That is good, really fast.
Where do you run and what sort of time (morning, evening) do you run?
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

User avatar
Atoq
Posts: 388
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Fri Mar 20, 2020 8:37 am

kiwiinoz wrote:How is your running? You still running your 5km at 4.15 pace wasn't it? That is good, really fast.
Where do you run and what sort of time (morning, evening) do you run?
Kiwi


I try to run 3 times a week, but in winter I am just happy for whatever distance and pace, because it is often dark and slippery. Now it is time to increase a bit the expectations. I run mostly in the evening, but in the weekend also during the day. I thought to run a 10k race in May but maybe now it will be canceled...

Best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

NHMike
Posts: 2505
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Mon Mar 23, 2020 4:22 pm

Atoq wrote:Hi! Today I had a new rectoscopy and they also give me the results of the CAT scan of abdomen and ecography to the lungs. Everything is fine, CEA normal.

:D :D :D

Next check in six months!

Now I will celebrate with a walk in the fields with my dog:

https://imgur.com/a/oOnMM24?

All the best

Claudia


Moving right along. Great to have another milestone done.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Caat55
Posts: 680
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Tue Apr 14, 2020 4:42 pm

Atoq wrote:
Caat55 wrote:That’s good news. Stay healthy and well in these challenging times. I am schedule for colonoscopy in two weeks, my second since surgery, first since reversal.
Take care,
Susan

Thanks! How are things where you live?
Good luck with the colonscopy, I did not get any painkiller or sedation with mine after surgery but it was not painful at all.

All the best

Claudia

Finally scheduled for Monday. Want to back out but I hope it will be okay, they should be hypersensitive to risks right now. Healthy and well otherwise. My daughter is going to start medical school this summer, she is pretty amazing and very concerned for me.
Keep going forward,
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
Atoq
Posts: 388
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Thu Apr 16, 2020 3:50 pm

Thanks Susan!
Then I will look for updates next week. So nice that your daughter is starting medical studies!

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

User avatar
Atoq
Posts: 388
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Sun Sep 27, 2020 3:09 am

Last week I had the six months check and everything is fine. I had however not a CAT scan but ecography and rectoscopy.

Best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

Claudine
Posts: 440
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Rectal cancer stage IV

Postby Claudine » Sun Sep 27, 2020 9:41 am

:D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 24.1
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 09/20: nothing to report

Caat55
Posts: 680
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Sun Sep 27, 2020 11:53 am

That’s great news. I have also had good reports, clean colonoscopy and got moved two a three year recheck.

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
Atoq
Posts: 388
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Mon Sep 28, 2020 1:35 pm

Caat55 wrote:That’s great news. I have also had good reports, clean colonoscopy and got moved two a three year recheck.

Susan

Such good news! Congratulations! :D

Best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

NHMike
Posts: 2505
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Tue Oct 06, 2020 7:20 pm

Atoq wrote:Last week I had the six months check and everything is fine. I had however not a CAT scan but ecography and rectoscopy.


Sounds great. I need to schedule the second one of those (I'm two months overdue and waiting another month as my hospital had an COVID cluster). I should look up what the first one is.

They do the second one in-between scans.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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