juliej wrote:I think there's some truth to this. All those lung mets are probably pumping up his CEA, especially since the liver mets are shrinking.
I also agree that it's a very positive sign that chemo has arrested tumor growth in the liver and even reduced it quite a bit. Those lungs mets are problematic though. However, implanting an HAI pump is not a big surgery. If they could slip one in and then immediately put him back on systemic chemo, it would at least be killing the liver mets.
I had mets in every lobe of my liver. Fortunately, they can do wedge-slices and remove them even when there's a large number, as long as they aren't in a difficult location. Sometimes, even with difficult locations, they can just remove a big section of the liver and it simply grows back (the only organ we have that does so!).
But those lungs.... I fear they will ultimately need laser surgery - unless he is responsive to one of the new immunotherapies. Have you talk to anyone about (CAR) T cell therapy? City of Hope is very experienced in that field. (CAR) T cell therapy involves manipulation of a patient's autologous T cells to specifically hone in on a designated tumor-associated antigen (like little custom-made killer drones attacking his particular cancer!). You might ask about it when you have your consultation at City of Hope.
So, ask Dr. Vogl about laser surgery on the lungs. Ask Dr.Fong about (CAR)T cell therapy. Ask MSK about HAI pump. Ask everyone about immunotherapy trials.
Stay strong. Be perisistent and keep asking questions. Stage 4's like Jesper and me aren't an easy fix. It takes someone willing to think outside the box. Let us know what you find out from the consultations!
xoxo,
Juliej
Vana3 wrote:I just wanted to second Julie (BTW Juliej you rock)
“Stay strong. Be persistent and keep asking questions”
We have been continually shocked by the differences between doctors.... we also are searching for the ones that think outside the box!
Vana3 wrote:I just wanted to second Julie (BTW Juliej you rock)
“Stay strong. Be persistent and keep asking questions”
We have been continually shocked by the differences between doctors.... we also are searching for the ones that think outside the box!
ginabeewell wrote:
If I had worked with one of the first three oncologists I met with, I might be halfway to dead by now. Three of them! And all from major cancer centers! Finding a doctor who can treat Jesper with curative intent might be a challenge but they ARE out there. You’ve done a great job researching and plotting a plan to make sure he has the very best care and the very best shot at beating this.
brokenwings wrote:Hi.
I think the only treatment for the liver that excludes other options is Y90. However, you should wait for an expert to chime in.
How many liver mets does he have?
Hugs.
AlexandraZ wrote:brokenwings wrote:Hi.
I think the only treatment for the liver that excludes other options is Y90. However, you should wait for an expert to chime in.
How many liver mets does he have?
Hugs.
Thanks for your reply! He has between 10 and 20 liver mets. The biggest ones are about 2.5 cm.
brokenwings wrote:
I'm not sure they will be able to zap them all at once... I read somewhere that they can do 6 or 7 max in one intervention...
AlexandraZ wrote:brokenwings wrote:
I'm not sure they will be able to zap them all at once... I read somewhere that they can do 6 or 7 max in one intervention...
Yeah you're probably right. Well we'll start with the biggest ones in that case and then see what the next step is.
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