Thanks for all the genuine feedback!
Here is what I did:
Infusion#10- I went with 50% dose of Oxaliplatin.... for the first time, I did NOT have ANY cold sensitivity. I could drink water- way better. I debated if that the lack of cold sensitivity was due to less oxaliplatin or because my nerves are fried with neuropathy... but since I could drink without it feeling like gravel, I decided it was due to the lesser amount. I did not feel like the neuropathy spread either- but dang that is really hard to judge where my "numbness line" is... and also, the numbness did not even hit until 6 weeks post-chemo so think I have a pretty delayed effect receptor.
Infuison#11- reduced oxaliplatin down to 25%.... again no cold sensitivity. But here is the weirdest part-- I have super minimal nausea this time. With all my other chemos, I was in bed 4 days feeling "seasick" and could hardly have a conversation-- but this time I am eating and drink with my family day#1&2 still hooked up to the 5FU ball-- CRAZY!!! Was it the oxaliplatin making me nauseous this whole time?
Infuison#11- not sure-- that is Jan 28.... thinking 25% again.... I mean, I WANT to say zero. But....I guess I am stuck on thinking if this bologna comes back, will I kick myself for not doing all that I could?
Thankful for you guys!
DX@39yo in April19: Stage 4 Sigmoid Mets to peritoneum, ovaries, spleen
June-Oct 2019: FOLFOX, Avastin, 5FU (9 infusions)
Nov19: Cytoreductive+HiPEC at UCSD, PCI score= 8
Jan20: FOLFOX, Avastin, 5FU (3 infusions)
April,June,Aug2020: watching several small growing lung nodules
Married w/ two sons (5,1). Oregon coast-USA. Solid in my faith & firmly believe WHATEVER the future holds, God is with us & THAT is enough...while praying my socks for full recovery & chance to raise my kids to adulthood.