I feel like I got steered in the wrong direction when it came to neuropathy.... I was told we were watching for "numbness that did not go away"--- HOWEVER, that is not exactly how things have played out of me.
Chemo #1-#9: Cold sensitivity started immediately... like right in the infusion chair. I needed to heat up all drinks (room temp was too cold) for about a week after infusion & wear gloves when handling anything chilled or cool. Then all this seemed progressively fade the second week & by the time I was back in the infusion chair I was symptom-free. So I THOUGHT I was lucky & neuropathy was not going to get a permanent hold on me.
THEN I was off chemo for a while gearing up & having the big Cytoreductive/HiPEC surgery. At appx the 6weeks mark after my last chemo w/Oxalliplatin, my fingers started to tingle & go numb... then my toes... and now at about the 9week postmark, add both feet. It seems to be building??? Not sure if I've hit full extent??
NOW FOR INPUT REQUEST... My oncologist is leaving continuing Oxi up to me. I just did Chemo#10 at 50%. Any thoughts about what to do for #11 and #12?
Thanks!!