Just wrapped up my day at MSK, and suffice to say it was not the day I expected!
Scanxiety hit in a big way after yesterday's scan - I got so worried I think I freaked my husband out, because I don't usually get that worked up. Going into the day's appointment, we were hoping for 1) a clean scan, 2) clearance to resume chemo and 3) approval for my drain to come out. But that was a tall order so I joked I would be happy with even one of the three.
Dr Kingham came in first and told us the scan looked good. He was optimistic about the drain coming out, but wanted me to maintain Wednesday's appointment with IR - "They will either pull it or reposition it depending on what they see - but even if they do the latter, I would think it would be out within the next two weeks."
Great! I'll take it.
Then Dr Kemeny came in, and after a little check-in, I told her I was hoping to start chemo today. "How long have you been off now?" she asked, and then left the room to look at a calendar. When she returned, she told me that the point of mop up chemo is to start right after surgery, because you don't know what will happen. In my case, it's been more than three months, so she doesn't see the point of resuming chemo. She wants to just monitor me with CT scans every two months.
I about fell off my chair - this is the LAST thing I was expecting!
It feels a little scary - I think the chemo maybe provides a false sense of security - and maybe too good to be true. I'm still trying to process, I guess. Anyway, now trying to decide where to have a little celebratory dinner in light of the news!!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection