I have posted in the past about a creeping normal range CEA level but now need some more encouragement but also to see if anyone else had this same kinda situation......Grateful for any insight or stories....
So long story short, I was 38 years old I had a colonoscopy 6/19 which found my colon cancer. Had 2 CAT scans one of my abdomen, which barely picked up my cancer in my colon and my liver was “clear” they said and a CAT scan of lungs that was all clear. So had the surgery of my colon 2’ removed 19/32 lymph nodes had cancer microscopic in them along with colon the tumor pushed thru microscopically. My surgeon was very surprised had bad it was. So Chemo it was from 9/19 to 2/19. Finished Chemo thinking it was all good but then had a CAT scan on 3/19 a month after I finished chemo and that’s when the crap hit the fan!!!! The CAT scan showed spots on my liver!!!!! The person reading the scan went back to the scan before surgery and wrote these spots were never reported and were there!!!! So 6 months later 1 PET scan and 2 MRI’s I was sent to see an amazing surgeon at White Plains Hospital (Dr. Roayaie) who cut out 4 tumors and did ablation on 3 small spots that may or may not have been cancer. He did not remove either the right/left lobe he just cut out the cancer. He wanted to keep as much as my liver for future issue if cancer ever pops it’s ugly head again.
So Nov 2019 I started my 12 rounds of Chemo, had scans prior of the Chemo but after surgery which were NED!!!! Next scans are Jan 15.
Any responses would be very appropriated....... thank you