Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020

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CRguy
Posts: 10116
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 26/2019

Postby CRguy » Fri Dec 27, 2019 7:29 pm

I repurposed your old TV light music show monitor ! :mrgreen:

Actually I designed a "homebrew" plan using ultrasound scans and survey xrays to get multiple imaging modalities
done after I was officially released from the Onco care at the Cancer Agency.

My Doc is on board and we sit down to review things, so if a there are any "WTF is that?" moments
we get into doing CT / MRI / PET ... now only as required and indicated by survey scans.

I figured I'd had enough radiation already with all my CTs so the xrays and U/sounds
don't add to the total very much. Still getting c-scopes as recommended by CRC surgeon
and doing some kind of blood work every 3-6 months as a routine.... again more extensive workups only as required.

Sorry gotta go now
back into the workshop to get the theremin retuned to scream LOUD and Proud
for the World Junior Hockey Championships :mrgreen:

Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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juliej
Posts: 3098
Joined: Thu Aug 05, 2010 12:59 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 26/2019

Postby juliej » Mon Dec 30, 2019 6:45 pm

CRguy wrote:Sorry gotta go now
back into the workshop to get the theremin retuned to scream LOUD and Proud
for the World Junior Hockey Championships :mrgreen:

And.....

CANADA BEATS GERMANY 4-1 !!!!!!

Bring on the screamin' theremin! :D :D :D :D

Now on to the Czechs!!!

JJ
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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CRguy
Posts: 10116
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 26/2019

Postby CRguy » Mon Dec 30, 2019 8:05 pm

JJ

Sincere HARMONY and GRATITUDE
for NOT mentioning the Russia game :twisted: :twisted: :twisted:
:mrgreen: BUTT then.... after all ... you are family and Team CR
...SO you knows da' rules !!!
:mrgreen: :mrgreen: :mrgreen:

I think we may need the original Altec Lansing "Voice of the Theaters"
with amps running on "eleven" :shock: for the Czech game

WORD !

Cheers and Harmony
Best of the Holidays to you
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

MetastaticEquilibria
Posts: 74
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 26/2019

Postby MetastaticEquilibria » Thu Jan 02, 2020 1:00 am

Just watched “First Man.” As soon as I heard the Theremin in the soundtrack, I thought of yours.

Reading around, it seems Neil Armstrong was a fan of the Theremin. So you have that in common with him!
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

User avatar
CRguy
Posts: 10116
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020

Postby CRguy » Wed Jan 15, 2020 11:49 pm

Sorry for being MIA with an update ... :shock:
Had a very hectic ... BUTT ... fun and family filled Christmas season
Dealing with unusual weather around here and just trying to stay safe and warm !!!!!

Recent Imaging and bloods ALL looking good, as in
" no further scans or follow ups required "

My Doc and I have decided to wait on any CT decisions, until at least this summer, and likely not until NEXT year ... 2021.
I have had a shitload of them and we are looking at total radiation doses now that CRC things seem to have been kicked to the curb.

Modified mini-blood tests will continue every 3-6 months for regular monitoring and additions added, as indicated by
any new changes or problems. I see her after each set of tests so I am always in " follow up " which is just fine by me.

CT / MRI / PET ...all available as needed ... AND
Gratefully, thankfully NOT needed at this time :D

Sending MEGA Cheers and POSI Vibes to ALL on the Journey

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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juliej
Posts: 3098
Joined: Thu Aug 05, 2010 12:59 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020

Postby juliej » Thu Jan 16, 2020 6:46 pm

CRguy wrote:Recent Imaging and bloods ALL looking good, as in
" no further scans or follow ups required "

WOO-HOO!!!!! That's what I want to hear!!! :D :D :D

Here's to a lifetime of health and mind/body/spirit harmony.

xoxo,
JJ
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

User avatar
CRguy
Posts: 10116
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020

Postby CRguy » Thu Jan 16, 2020 11:22 pm

WORD ! JJ ... and backatcha' MEGAfold !!!!

Harmony sista'
with you always... on the Journey

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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