Rectal cancer (Stage 3A) diagnosed late June 2017

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Tupelo honey
Posts: 42
Joined: Tue Jul 19, 2016 7:57 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Tupelo honey » Mon Dec 02, 2019 5:47 pm

NHMike wrote:
rachelfromnyc wrote:Hi Mike- I take probiotics daily in two doses, morning and evening. I also take digestive enzymes before meals.


I will keep that in mind. I'm going to stick with once a day for now and will have to decide on experiments with prebiotics after current experiments. If the probiotics work out well, then there's less motivation to try other things.


Flaxseed and Nopal (cactus) are both prebiotics so you are already taking them if you are still using Nopalina.
Rectal Cancer Stage 3A 10-22-2015 T2N1M0
Start Chemo radiation 11/2015
LAR TME w/ total hysterectomy 3/14/2016 pT2N1M0 No ileo, straight connect
Start Xelox 4/21/16 1 week on/1 week off
Switch to Xelox 2 weeks on/1 week off 6/1/2016
Supplements: Curcumin, PSK, Celixicob, Cimetidime, Glutamine, L-Acytel Carnitine, Vit D, Vit B6, Vit B12, magnesium, calcium, aspirin, metformin, modified citrus pectin
10/2016 NED
03/2017 NED
07/2017 NED
11/2017 NED
05/2018 NED
11/2018 NED
11/2019 NED

NHMike
Posts: 2338
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Wed Dec 04, 2019 9:23 am

Tupelo honey wrote:
NHMike wrote:
rachelfromnyc wrote:Hi Mike- I take probiotics daily in two doses, morning and evening. I also take digestive enzymes before meals.


I will keep that in mind. I'm going to stick with once a day for now and will have to decide on experiments with prebiotics after current experiments. If the probiotics work out well, then there's less motivation to try other things.


Flaxseed and Nopal (cactus) are both prebiotics so you are already taking them if you are still using Nopalina.


I had wondered about the name.

Yes, I am still taking Nopalina. I was wondering why it had effects that regular fiber didn't. So I suspect that I don't need additional prebiotics. Nopalina gives you prebiotics, stool softener and different types of fiber. I'm still not sure what the fruit extracts do either. Nopalina is quite a bit less expensive than prebiotics and probiotics. I am not completely sold on probiotics right now - at least not as a daily thing. If you get probiotics, and they live in your gut, why do you need to take them every day? I am considering taking them once a week to see how well that goes.

In the meantime, I have a month supply of Banatrol and I guess I'll start taking them to see if they result in any noticeable change. If I don't see any benefit, then I will just stick with Nopalina.

I had to shovel over a foot of snow again yesterday. The coolest thing is that I wasn't sore after shoveling. Normally I'm sore after the first snowstorm but the barbell stuff means that shoveling is easy and that I don't get sore or injured.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2338
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Dec 07, 2019 1:52 pm

I've determined that the Probiotic can help but it can also make things worse. I suspect that there is some dosage that's beneficial but that dosage is less than a capsule per day, perhaps a lot less. I think that the best approach is to stick with the Nopalina and Slipper Elm. Next up is experimenting with the Prebiotic.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

mpbser
Posts: 936
Joined: Wed Apr 19, 2017 11:52 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby mpbser » Thu Dec 12, 2019 5:56 pm

Slippery elm is awesome stuff
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

James65
Posts: 378
Joined: Thu Mar 06, 2008 9:41 am
Location: Exeter, NH
Contact:

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby James65 » Thu Dec 12, 2019 6:25 pm

Howdy Mike, been a while.

I was wondering if you've tried Senna? That's what I use and it works for constipation and helps me have relatively predictable bowel movements.

I'm also wondering about the slippery elm. Anybody have success with that for constipation?
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Oops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13. So far so good.
Oops again, one tumor in each lung diagnosed 8/8/16. One too small to deal with and the other resected in late September. Wait and watch for now.
Oops, another lung Met in upper left lobe on edge of previous resection scar 11/11/19.

NHMike
Posts: 2338
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Thu Dec 12, 2019 6:46 pm

James65 wrote:Howdy Mike, been a while.

I was wondering if you've tried Senna? That's what I use and it works for constipation and helps me have relatively predictable bowel movements.

I'm also wondering about the slippery elm. Anybody have success with that for constipation?


Nopalina contains Senna. Nopalina is pretty cool stuff - prebiotic, five kinds of fiber and Senna. It has some fruit juice extracts too and I'm not sure what those do.

Nopalina is reasonably priced too. Some of these supplements are pretty expensive and only do one thing.

I learned about Slippery Elm on the LARs Facebook group.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2338
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Thu Dec 12, 2019 6:48 pm

mpbser wrote:Slippery elm is awesome stuff


My oncologist at Dana Farber was familiar with it when I mentioned it a long time ago.

The effect is to coat the intestines and calm inflammation. So it can be used for things like IBD too. I just find that stuff goes through faster with it.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2338
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Fri Dec 13, 2019 3:33 pm

I've been reading up on VO2Max - an interesting study used a group, average age 61 with VO2Max 18 or lower. 55% mortality rate after two years. The mortality rate above 18 was 11%. I did some checking and basically 18 or lower is 1% of the population. VO2Max is well correlated with longevity. The question is how do you improve it? From what I found, it's interval training. Also, cyclists tend to have the highest numbers. I suspect that is because you can work your heart very hard without damaging your joints.

Our local YMCA has Keiser indoor bicycles and they are supposedly excellent. I've never actually seen them though. They are in a spinning room and the room is always dark. So I'm going to go into the room tonight to see if I can see what they can do. I don't have a flashlight handy but I assume that there is some kind of lighting in the room.

I did some interval training this morning and am resigned that I will have to do interval training to get into much better shape. Interval training isn't pleasant but it's the most efficient way to improve cardiovascular capacity.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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