Surgery here, and done.

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Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Surgery here, and done.

Postby Mohrfamily » Tue Nov 12, 2019 7:42 pm

DH and I started this journey a year and a half ago, spending a lot of that time wondering how long we had. If your reading this you know to some extent that so I won't yack about it.

OSU gave us more. Today they resected his colon and placed an original HAI pump.

No surprises, disease was only present in the colon and the liver. The colon surgeon mentioned he could see how the tumor had shrunk from the chemo. Nothing was found anywhere else. The liver surgeon mentioned talking about pump treatment or this or that and I told her I know my husband and when he is green lighted for anything, he will do anything and everything meaning pump AND systemic. She smiled and was like that's great to hear.

So happy and so thankful
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

radnyc
Posts: 446
Joined: Tue Apr 06, 2010 6:32 pm

Re: Surgery here, and done.

Postby radnyc » Tue Nov 12, 2019 7:47 pm

Great news! Sounds like everything went as planned, stay positive and strong!
DX Jan 2010, at age 47
Feb - colon resection - 2/17 nodes positive
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April 2011
HAI Pump removed Dec 2015

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Surgery here, and done.

Postby Punky44 » Tue Nov 12, 2019 8:03 pm

Great news, I know you were worried about surgery—happy you got a great report and all went well.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Surgery here, and done.

Postby ginabeewell » Tue Nov 12, 2019 9:02 pm

So glad it all went well and hope his recovery continues to go smoothly. That operation for me was the easiest of my three; still i felt worse on Day 2 than I did the day after - probably because anesthesia wore off!

Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Re: Surgery here, and done.

Postby Mohrfamily » Tue Nov 12, 2019 9:23 pm

ginabeewell wrote:Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!


He had an epidural catheter before surgery so that should keep him comfy for a bit
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Surgery here, and done.

Postby ginabeewell » Tue Nov 12, 2019 9:39 pm

Mohrfamily wrote:
ginabeewell wrote:Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!


He had an epidural catheter before surgery so that should keep him comfy for a bit


Oh that’s perfect. My first surgery, they were worried about the fact that I had only one kidney and basically tried to control the pain with Tylenol. The nurse said she couldn’t call anyone; by the time the doctors saw me at rounds early the next morning, I was literally writhing in pain!

Didn’t happen again. ; )

This last time I had an epidural and it was great.
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Surgery here, and done.

Postby CRguy » Wed Nov 13, 2019 1:37 am

Mohrfamily wrote:
ginabeewell wrote:Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!

He had an epidural catheter before surgery so that should keep him comfy for a bit


Getting pain under control BEFORE it sets in IS 100% the way to go !!!!!

With epidurals ( had a few :shock: ) they need to watch for urinary retention after they are finished.
Make sure you and hubby know to keep bugging the nurses about urine outputs after the epidural is out.

Sometimes it takes a while and they may need to catheterize him, to empty the bladder before it starts up on its own.

BTDT :twisted:

Best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Re: Surgery here, and done.

Postby Mohrfamily » Wed Nov 13, 2019 5:07 am

CRguy wrote:
Mohrfamily wrote:
ginabeewell wrote:Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!!

He had an epidural catheter before surgery so that should keep him comfy for a bit


Getting pain under control BEFORE it sets in IS 100% the way to go !!!!!

With epidurals ( had a few :shock: ) they need to watch for urinary retention after they are finished.
Make sure you and hubby know to keep bugging the nurses about urine outputs after the epidural is out.

Sometimes it takes a while and they may need to catheterize him, to empty the bladder before it starts up on its own.

BTDT :twisted:

Best wishes
CRguy


He mention feeling like he had to pee but was afraid to go, I told him not to worry about it (catheter) seemed to relax some. Now having sternum pain but everything looks ok after EKG and chest xray. Even tried a few breathing exercises and did ok with a few.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: Surgery here, and done.

Postby MeAndMine » Wed Nov 13, 2019 7:42 am

That's excellent news!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

MetastaticEquilibria
Posts: 74
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: Surgery here, and done.

Postby MetastaticEquilibria » Wed Nov 13, 2019 8:16 am

Good luck with the pump!
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Surgery here, and done.

Postby NHMike » Wed Nov 13, 2019 10:20 am

Happy things are going well for him.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Jack&KatiesMommy
Posts: 640
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Surgery here, and done.

Postby Jack&KatiesMommy » Wed Nov 13, 2019 10:26 am

So happy for you both! Hoping for only good news for you in the future!

Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Surgery here, and done.

Postby Gravelyguy » Wed Nov 13, 2019 10:55 am

What wonderful news! Praying that the next steps go smoothly and you guys can live NED for years!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Surgery here, and done.

Postby claudine » Wed Nov 13, 2019 11:00 am

Fantastic!! Here's to many years of NED life for you guys!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Re: Surgery here, and done.

Postby Mohrfamily » Wed Nov 13, 2019 4:22 pm

I just want to thank everyone who has followed me around on here, the thoughts and prayers.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI


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