Positive peri met stories please

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Trying
Posts: 228
Joined: Sun May 13, 2018 10:11 pm

Positive peri met stories please

Postby Trying » Sat Oct 26, 2019 9:22 am

Theres been some talk on peri mets lately and i have them as well. To help those of us with the out,it may help to hear of positive or reassuring stories you may have even if its something you read or heard. Thanks guys.
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

WarriorSpouse
Posts: 214
Joined: Tue Aug 16, 2016 9:02 pm

Re: Positive peri met stories please

Postby WarriorSpouse » Sat Oct 26, 2019 10:53 am

My wife is still going five years into a Stage IV diagnosis with peri-mets. Stay on top of it. Visit a major cancer center for guidance and proper protocols based on recent science, evidence and practices. Make sure you have an advocate by your side keeping track of your treatments and keeping up with recent research and practices. Keep being positive and stay in touch if you have questions.
All the best going forward:)
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

Trying
Posts: 228
Joined: Sun May 13, 2018 10:11 pm

Re: Positive peri met stories please

Postby Trying » Sat Oct 26, 2019 12:05 pm

Thank you for sharing
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

nzjez
Posts: 22
Joined: Sat Jan 19, 2019 12:23 pm
Facebook Username: Jeremy Macgillivray

Re: Positive peri met stories please

Postby nzjez » Mon Oct 28, 2019 4:00 am

Hey Trying.
I too am hoping to hear positive stories.
Diagnosed 2 months ago with a peri met, laparoscopy found one tumour (about 3cm) three weeks ago. Still waiting to hear for surgical date for CRS/HIPEC.
What do you know about your mets? Are you able to go for Cytoreductive surgery?
Hope you are coping ok.
Jeremy
Male, Dx 39
Stage 4c (T3N2bM1c 21/47 LNs)
BRAF mutation KRAS wild type
2018-11 - Colon resection
2018-12 - CAPOX Chemo started
2019-03 Clear CT
CEA 7/19 0.8
2019-09 PET/CT found metastasis in peritoneal
2019-10 Laparoscopy found a single peri met, CRS/HIPEC option offered.
2019-11 CRS/HIPEC surgery 3 peri mets removed.

Trying
Posts: 228
Joined: Sun May 13, 2018 10:11 pm

Re: Positive peri met stories please

Postby Trying » Mon Oct 28, 2019 10:01 am

Hi jeremy

I honestly dont know a lot about my peri met except it has responded a small amount on chemo. There are positive stories on here bit i was hoping to hear more for this post.

Nicole
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

Trying
Posts: 228
Joined: Sun May 13, 2018 10:11 pm

Re: Positive peri met stories please

Postby Trying » Mon Oct 28, 2019 10:02 am

Hi jeremy

I honestly dont know a lot about my peri met except it has responded a small amount on chemo. There are positive stories on here bit i was hoping to hear more for this post.

Nicole
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

WarriorSpouse
Posts: 214
Joined: Tue Aug 16, 2016 9:02 pm

Re: Positive peri met stories please

Postby WarriorSpouse » Tue Oct 29, 2019 12:05 am

Lymph node metastasis affects a smaller amount of CRC patients. I want to say about 12% of the cases You can read of other's experiences from past posts by using the search tool under quick links on the top left of the screen. Many have referred themselves as "lymphonians", I believe. Tweak the searches and you can find past threads from lymphonians here on CT. All the best.
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

Trying
Posts: 228
Joined: Sun May 13, 2018 10:11 pm

Re: Positive peri met stories please

Postby Trying » Tue Oct 29, 2019 11:10 am

Thank you :D
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

mandosquiddy
Posts: 34
Joined: Sat Oct 06, 2018 11:45 am
Location: Colorado
Contact:

Re: Positive peri met stories please

Postby mandosquiddy » Tue Oct 29, 2019 7:51 pm

A peri met was discovered on the outside of my small intestine in September of 2018. In October I had CRS/HIPEC. They actually ended up skipping the HIPEC portion b/c I was open up for so long just on the CR part. It's been over a year now and nothing else has shown up. As of last month bloodwork and scans are looking good.
4/2017 DX: sigmoid colon cancer
colectomy/colostomy
stage II with one positive margin
5/2017 - 11/17 12 rounds of FOLFOX
11/17 - 12/17 Increase in back pain and testicular pain.
CEA increased, CT scan indicated mass on rectal portion of colon
1/18 - 2/18 25 rounds of radiation treatment
5/18 surgery, interoperative radiation, bladder/ureter modification
7/18 normal blood work and CT scan
9/18 increased CEA, mass on small intestine
10/18 Debulking surgery/illeostomy
1/19 Ostomy reversal
12/19 CEA 1.3!!!!

Trying
Posts: 228
Joined: Sun May 13, 2018 10:11 pm

Re: Positive peri met stories please

Postby Trying » Wed Oct 30, 2019 10:01 am

Great to hear. Thank you
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy


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