NEW-Need some positivity here.

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teacher2017
Posts: 260
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Mon Aug 26, 2019 6:31 am

Atoq wrote:When will you know the results of the last scan? I also had one on the 20th of August, light CAT to the chest and ecography to the liver. I will have a scope on the 4th of September and then get the answer. But I am not worried, if I am sick I will face it when it is real and not just a possibility. I know is not something you can control but just to give another point of view. A big hug and good luck!

Claudia



Tomorrow morning around 10. I’ll know results. And thank you!
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

teacher2017
Posts: 260
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Mon Aug 26, 2019 6:32 am

DonutHead wrote:you are not a crazy woman, you just had a bad day! we all have those and it is not something to beat yourself up over. i remember telling my doctor that my port was coming out, i didn't care what happened or what he thought, my body and i am paying for the procedure. the bleeding is normal and an ever so slight rise in your CEA is meaningless. a .2 rise is not even something you should blink over. If it were 20.something then maybe there is cause for concern. environmental changes, biological changes, exposure to certain conditions can all contribute to a rise in your CEA count. Take my count, it has always been at a steady 2.0, even when i had cancer and after treatment. My last bloodwork pegged it at 2.0 and it's been almost 2 years now.

Just hit reset and try again. if you are not comfortable with your port being accessed, say so. They are there to serve you. BIG hug to you. You got this, nothing to be worried ove!


Thank you once again. It was just a crappy day. I’ll hane the results tomorrow.
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

teacher2017
Posts: 260
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Tue Aug 27, 2019 12:10 pm

All Clear!!! Booyah!!! 1 year cancer free! Now three months Cea and six month scans. Port is coming out this month!!!
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

DonutHead
Posts: 63
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Tue Aug 27, 2019 12:24 pm

Congrats!!! Such great news! hate to say I told you so! :)
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: Colonoscopy & PET/CT - NED
03/2019: CT - NED
09/2019: Colonoscopy & CT - NED (0.9 CEA)
Still Here!

Beckster
Posts: 414
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: NEW-Need some positivity here.

Postby Beckster » Tue Aug 27, 2019 12:42 pm

WONDERFUL NEWS!!!!! :D :D :D
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D

Punky44
Posts: 437
Joined: Mon Oct 01, 2018 4:29 pm

Re: NEW-Need some positivity here.

Postby Punky44 » Tue Aug 27, 2019 11:44 pm

Yayayayay!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 2.1; 1.9; 2.6; 2.8
6/28/19 Reversal and port out
10/22/19: CT showed new nodules
1/28/20: CT showed nodules shrinking

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
Atoq
Posts: 367
Joined: Wed Oct 25, 2017 9:31 am

Re: NEW-Need some positivity here.

Postby Atoq » Fri Aug 30, 2019 3:47 pm

Fantastic news! I am really happy :D

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

teacher2017
Posts: 260
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Thu Sep 05, 2019 7:44 pm

Thank you everyone- the support from all of you is always very helpful. A million thanks!
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

DonutHead
Posts: 63
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Fri Sep 13, 2019 3:27 am

Okay, guys...here we go. It's my turn next week to get through my check-ups. It's been 2 years since surgery and just over 1.5 years since chemo ended. I feel great, no physical worries, but anxious none-the-less. You just never know with cancer!
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: Colonoscopy & PET/CT - NED
03/2019: CT - NED
09/2019: Colonoscopy & CT - NED (0.9 CEA)
Still Here!

teacher2017
Posts: 260
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sat Sep 21, 2019 8:14 pm

DonutHead wrote:Okay, guys...here we go. It's my turn next week to get through my check-ups. It's been 2 years since surgery and just over 1.5 years since chemo ended. I feel great, no physical worries, but anxious none-the-less. You just never know with cancer!



Please keep us posted!!! Hoping for a completely uneventful scan!!!! Praying!
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

teacher2017
Posts: 260
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sat Oct 26, 2019 7:17 am

Port removed!!! It’s a beautiful thing!!!! Amazing feeling!
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

Jannine
Posts: 189
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: NEW-Need some positivity here.

Postby Jannine » Sat Oct 26, 2019 8:04 am

Congrats!! So happy for you! :D
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

teacher2017
Posts: 260
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Mon Dec 16, 2019 8:24 pm

Hi all-
I had my latest blood work and all seems well. Cea level is at 1.2 again and no anemia. Some pains every now and again in the liver, but hoping it’s nothing. I just made a friend with a an oncology/chemo pharmacist. She mentioned taking metformin and possibly oncoloplex. Anyone take these? She also reiterated Vitamin d3. Also looking into a FoundationOne test. Anyone else?
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19

Beckster
Posts: 414
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: NEW-Need some positivity here.

Postby Beckster » Tue Dec 17, 2019 9:00 am

teacher2017 wrote:Hi all-
I had my latest blood work and all seems well. Cea level is at 1.2 again and no anemia. Some pains every now and again in the liver, but hoping it’s nothing. I just made a friend with a an oncology/chemo pharmacist. She mentioned taking metformin and possibly oncoloplex. Anyone take these? She also reiterated Vitamin d3. Also looking into a FoundationOne test. Anyone else?


Glad to hear you are doing well! My oncologist reiterated the importance of D3. I take 2000 mg every day. Also, I am pre diabetic, but I was not told anything about metformin. I wish I knew this yesterday because I had my onc appt and would have asked. I am now past the 3 year mark, and he decreased my appts to twice a year and CT scan yearly instead of every 6 months!

Hope you have a wonderful Christmas and healthy New Year
Beckster
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D

teacher2017
Posts: 260
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Tue Dec 17, 2019 4:08 pm

Beckster wrote:
teacher2017 wrote:Hi all-
I had my latest blood work and all seems well. Cea level is at 1.2 again and no anemia. Some pains every now and again in the liver, but hoping it’s nothing. I just made a friend with a an oncology/chemo pharmacist. She mentioned taking metformin and possibly oncoloplex. Anyone take these? She also reiterated Vitamin d3. Also looking into a FoundationOne test. Anyone else?


Glad to hear you are doing well! My oncologist reiterated the importance of D3. I take 2000 mg every day. Also, I am pre diabetic, but I was not told anything about metformin. I wish I knew this yesterday because I had my onc appt and would have asked. I am now past the 3 year mark, and he decreased my appts to twice a year and CT scan yearly instead of every 6 months!

Hope you have a wonderful Christmas and healthy New Year
Beckster




You too! Merry Christmas!!!!
50 yo mom of 2 (14, 17)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/8/17-4/18
CEA - 1.4 11/8/17
Colonoscopy- 5/18 - CLEAR!
Cea - 1.8 6/18
Cea - 2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/18
Cea level- 1.5 10/18
Cea level- 1.2 12/18
Clear scan- 12/5/18
Cea level- 1.1 3/19
Clear scan- 3/19
Cea level- 1.2 6/19
Clear scan- 6/2/19
Colonoscopy - 7/19 CLEAR
Cea level- 1.5 8/19
Clear scan - 8/19
Port removal- 9/19
Cea level- 1.2 10/19


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