Newly diagnosed 36 yo male with stage IV

[del]

I got second opinions from Dana-Farber and another smaller centre, and have one underway with MSKCC for my peace of mind. All generally aligned so far, but of course it’s early days.

Hi Rock Lobster, sorry to hear about your recent bad luck. Hope the DVT is not too painful and heals up quickly. I'm in Australia too and just curious how you got second opinions from Dana-Farber and MSKCC? Did you fly to the US or are you doing this remotely somehow? And I'm assuming it would not be covered by Medicare/insurance so you are paying for this out of pocket?

[Rock_Robster]

I got second opinions from Dana-Farber and another smaller centre, and have one underway with MSKCC for my peace of mind. All generally aligned so far, but of course it’s early days.

Hi Rock Lobster, sorry to hear about your recent bad luck. Hope the DVT is not too painful and heals up quickly. I'm in Australia too and just curious how you got second opinions from Dana-Farber and MSKCC? Did you fly to the US or are you doing this remotely somehow? And I'm assuming it would not be covered by Medicare/insurance so you are paying for this out of pocket?

Hi Del, both MSKCC and Dana-Farber do Remote Second Opinions which you can start via their website. No doubt this isn’t the same as being seen in person but it did help my peace of mind without yet having to travel to the US. Of the two, I found the MSKCC opinion to be a bit more helpful, faster turnaround, and also a bit cheaper.

As far as I’m aware Medicare doesn’t cover it; for insurance however probably best to check with the insurer directly - mine did but it was an international fund so may not be the norm. Good luck and let me know if I can be of any help with this.

[del]

Interesting. I didn't realise remote second opinions were possible and it didn't even occur to me to check when I was seeking opinions. Good to know for future.

[crazeekahl]

We too are in Melbs. It is still crazy for us & our head continues to spin. My husband has just completed round 4 chemo. His liver is inoperable atm. We are hoing for big changes.......

[Rock_Robster]

We too are in Melbs. It is still crazy for us & our head continues to spin. My husband has just completed round 4 chemo. His liver is inoperable atm. We are hoing for big changes.......

Hi crazeekahl, I’m sorry I just realised in the chaos of my initial diagnosis I never responded to your message above. I hope you and your husband are doing well, and have had positive news in the meantime. Also hope you survived the Melbourne winter, and maybe even are Tigers fans