Olymphians w/ surgery advice/experiences??

[Siti]

My colleague recommended this to me recently — her friend knows the founder.

I have yet to write to them but I think if you’re looking for trials this could help guide you to the right direction. I’m not sure if they’re any good but I guess no harm enquiring if you’re interested.

https://trial-in.com/

[Siti]

Hi Jep,

More knowledge sharing here, I just read about this - Cryotherapy. Essentially they use a probe/ needle to freeze / kill the cancer cells. Minimal invasive. I am not certain if it could work but worth the reading up too. There’s also Immuno-cryotherapy techniques.

All the best and thinking of you and your husband!

I’m getting ready to accompany my husband to the hospital for his second round of chemo today. I hope he doesn’t have bad side effects this time around!

[jep]

Thank you Siti....I will research that technique....sounds very interesting....the trial in NYC is closed....we got the call today....that’s ok though, as we are headed to Yale on Wednesday to see what they have to offer. My husband may decide to go with the radiation (cyberblade)....

[jep]

Well, 3 different doctors have now suggested that my husband move forward with a clinical trial....they feel that his treatment needs to be systemic (and that radiation can be done at any point)....great appointment at Smilow today....they have 2 trials in mind for my husband, But the team meets tomorrow to discuss the best trial....availability is uncertain, but we’re due for a little luck

[jep]

Hi everyone...just checking in, as my husband starts a Phase 1 clinical trial at Yale on Monday....immunotherapy....we’re hopeful but nervous. They did a CT scan and noticed that the lymph nodes have shifted a bit and are pressing on his ureter. He will need to have a stint put in....meeting with urologist on Tuesday. It feels like there are always glitches and stumbling blocks at every turn, but I guess that’s just the way it is. Hoping that Monday goes well and there are no reaction or issues. Hope everyone is doing well
jep

[Siti]

All the best to your husband, I am hoping for good results! stay strong Jep!

[Siti]

Is this immunotherapy treatment opened to the MSS patients or are they looking for certain mutations to qualify?

[jep]

My husband is MSS, so yes, they are accepting MSS in this trial.