FWIW, HAI pump is available in France.
Here's a link to the international patients section in Gustave Roussy Insitute:
https://www.gustaveroussy.fr/en/international-patients.
brokenwings wrote:FWIW, HAI pump is available in France.
Here's a link to the international patients section in Gustave Roussy Insitute:
https://www.gustaveroussy.fr/en/international-patients.
Rock_Robster wrote:brokenwings wrote:FWIW, HAI pump is available in France.
Here's a link to the international patients section in Gustave Roussy Insitute:
https://www.gustaveroussy.fr/en/international-patients.
That’s super interesting brokenwings, thanks for sharing.
My understanding (potentially incorrectly) is that FUDR is not approved in the EU; and from a few recent papers it looks like Gustave Roussy might be using oxaliplatin-based HAI? No idea how the safety/effectiveness compares between the two.
NHMike wrote:Rock_Robster wrote:brokenwings wrote:FWIW, HAI pump is available in France.
Here's a link to the international patients section in Gustave Roussy Insitute:
https://www.gustaveroussy.fr/en/international-patients.
That’s super interesting brokenwings, thanks for sharing.
My understanding (potentially incorrectly) is that FUDR is not approved in the EU; and from a few recent papers it looks like Gustave Roussy might be using oxaliplatin-based HAI? No idea how the safety/effectiveness compares between the two.
I could not imagine Oxaliplatin-based HAI.
Rock_Robster wrote:brokenwings wrote:FWIW, HAI pump is available in France.
Here's a link to the international patients section in Gustave Roussy Insitute:
https://www.gustaveroussy.fr/en/international-patients.
That’s super interesting brokenwings, thanks for sharing.
My understanding (potentially incorrectly) is that FUDR is not approved in the EU; and from a few recent papers it looks like Gustave Roussy might be using oxaliplatin-based HAI? No idea how the safety/effectiveness compares between the two.
brokenwings wrote:FWIW, HAI pump is available in France.
Here's a link to the international patients section in Gustave Roussy Insitute:
https://www.gustaveroussy.fr/en/international-patients.
We are by no means rich, but we are young and we have the rest of our lives to pay back debts. The most important thing is obviously to do whatever it takes to make the rest of his life long!
AlexandraZ wrote:Yikes, that's a lot of money. But that's the kind of ballpark figure I was expecting. I guess we're lucky it's all free here in Denmark.
AlexandraZ wrote:
Thanks for the data, both of you! We don't have any experience with oxaliplatin, but it sounds pretty rough whereas FUDR seems to have few side effects with the HAI pump. I think we'll start at MSK and see what they say. We are by no means rich, but we are young and we have the rest of our lives to pay back debts. The most important thing is obviously to do whatever it takes to make the rest of his life long!
zephyr wrote:AlexandraZ wrote:Yikes, that's a lot of money. But that's the kind of ballpark figure I was expecting. I guess we're lucky it's all free here in Denmark.
As I think someone else mentioned, ask about a cash pay price. Even U.S. citizens who have insurance but with high deductibles sometimes pay cash out of pocket upfront because the cost is less as a cash pay than the deductible they will pay if it goes through insurance. It is sometimes a significant savings.
AlexandraZ wrote:zephyr wrote:AlexandraZ wrote:Yikes, that's a lot of money. But that's the kind of ballpark figure I was expecting. I guess we're lucky it's all free here in Denmark.
As I think someone else mentioned, ask about a cash pay price. Even U.S. citizens who have insurance but with high deductibles sometimes pay cash out of pocket upfront because the cost is less as a cash pay than the deductible they will pay if it goes through insurance. It is sometimes a significant savings.
Oh thanks, good to know! We'll definitely ask for that then. We have a lot of people who are REALLY rooting for Jesper, and I think we can work it out somehow to get a lump sum, especially if it is cheaper that way.
We're waiting for all the documents from the hospital now...hopefully it goes quickly! They said they would send the CT scans with regular mail, so I hope it goes relatively quickly.
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