Liver has been chopped!!

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AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Tue Sep 03, 2019 6:55 am

itsalexander wrote:Hows it going now?



Splendidly. I'm strong enough to yell for the dogs when they went chasing something off in the woods this morning. Pushing the oxy back to every 6 hours instead of 4. Getting out of bed is way easier.

I have a badass scar. I'm totally showing this thing off. I'm a survivor and that's my proof. I fought hard to get that scar. I'm proud of it. Not everyone gets the chance to be rescected. I understand that reoccurrence is most likely, but we'll blow that bridge up when we get to it. But I won this battle.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

NHMike
Posts: 2272
Joined: Fri Jul 21, 2017 3:43 am

Re: Liver has been chopped!!

Postby NHMike » Tue Sep 03, 2019 7:04 am

AmyG wrote:
itsalexander wrote:Hows it going now?



Splendidly. I'm strong enough to yell for the dogs when they went chasing something off in the woods this morning. Pushing the oxy back to every 6 hours instead of 4. Getting out of bed is way easier.

I have a badass scar. I'm totally showing this thing off. I'm a survivor and that's my proof. I fought hard to get that scar. I'm proud of it. Not everyone gets the chance to be rescected. I understand that reoccurrence is most likely, but we'll blow that bridge up when we get to it. But I won this battle.


I just had to check mine. It's almost gone. The ileostomy and port scars are still prominent though.

Take a picture if you want to keep the image alive.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Tue Sep 03, 2019 8:49 am

42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

NHMike
Posts: 2272
Joined: Fri Jul 21, 2017 3:43 am

Re: Liver has been chopped!!

Postby NHMike » Tue Sep 03, 2019 9:14 am

That's a lot longer than mine!
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Tue Sep 03, 2019 9:37 am

NHMike wrote:That's a lot longer than mine!


THAT'S WHAT SHE SAID!!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Pyro
Posts: 298
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Liver has been chopped!!

Postby Pyro » Tue Sep 03, 2019 9:48 am

AmyG wrote:
NHMike wrote:That's a lot longer than mine!


THAT'S WHAT SHE SAID!!!


Ha!
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

User avatar
DBF
Posts: 311
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: Liver has been chopped!!

Postby DBF » Tue Sep 03, 2019 7:36 pm

Amy, I’m so glad your recovery is going well. I’ve been following your posts. I remember lying in bed with my own baby after the liver resection. It will be six years this Saturday since that surgery, and my liver has been cancer-free since then.

I hope you are able to relax and take it easy at home while you are recovering, and that you’ll be picking up that little baby very soon!

Oh! And I’m sorry to hear about chicken nugget. :(

Best,
Donna
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :D
Mom to 3 boys: 21, 9 & 6

stu
Posts: 1196
Joined: Sat Aug 17, 2013 5:46 pm

Re: Liver has been chopped!!

Postby stu » Wed Sep 04, 2019 3:41 am

I maybe should not say this but I think the surgeon did a fab job with your tattoo. It’s in perfect shape ! :D
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Wed Sep 04, 2019 8:40 pm

You know what else was chopped?????

My hair. Had my husband use his clippers and off it went. It was time. I had lost so much and it refuses to stop. So now if it's going to fall out, it will be stubble.

Bald is beautiful. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Claudine
Posts: 131
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Liver has been chopped!!

Postby Claudine » Thu Sep 05, 2019 1:54 pm

Woot woot!! Time for a new tat' (to celebrate!) :D
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, 17, 10, 6.4, 5, 4.8, 4.2, 3.6, 3.2, 3.3, 3.2, 3.7, 4.3, 4.2, 4.2, 5.0
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Sat Sep 07, 2019 1:46 pm

So. I'm a week and a half post op.

Off of all pain meds. Went to XC meet this morning, walked about 2 miles. Freshman daughter (baby #4) ran her very first high school 5k and placed 2nd overall for all 1-4A schools. She got a medal and her picture in the paper!!! She's 14 and ran a 25:45, first place was a senior that ran 24:51.

I'm so proud of her. I'm so thankful that I'm healthy enough to do these things. Baby #5 has his first football game of the season tonight and I'll be able to go to that and cheer him on.

Life is so good.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

hopefulandstrong
Posts: 44
Joined: Fri Apr 19, 2019 7:11 pm

Re: Liver has been chopped!!

Postby hopefulandstrong » Sat Sep 07, 2019 7:16 pm

Amy -

You are so inspiring. Keep keeping us up to date.

XX
54, female
1/8/19 DS Stage 4 with Liver Mets
1/11/19 Successful Colon Resect -- 12 inches of transverse colon removed
2/9/19 PET scan with disease confined to liver
2/18/19 Started Folfox -- CEA 70
5/1/19 -- Scans show progression -Switch to Folfiri
5/8/19 - BRAF mutation -- switch again to Triplet Therapy: Encorafenib, Binimetinib, Cetximab
6/13/19 - CEA dropped from 214 to 22
7/16/19 - CEA 2.8
8/1/19 - CT scan reveals 4 liver mets shrunk -- all under 3.1 CM.

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Sat Sep 14, 2019 12:22 pm

It's been 17 days since resection.

I feel really good, which makes me do too much, which results in me being sore. Not bad enough to take any tylenol but enough to notice and be uncomfortable. Overall, it's really manageable.

Another XC race today, another first place award for our runner. She ran an extremely hilly course and shaved more than a minute and a half off of last weeks race. 24:17. :shock: Football game is starting in a little more than half an hour for our 4th grader. Here's to hoping he gets a little more playtime! He got credited for his first tackle of the season last week, hoping he gets another today!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

MeAndMine
Posts: 123
Joined: Mon Aug 05, 2019 2:40 pm

Re: Liver has been chopped!!

Postby MeAndMine » Sat Sep 14, 2019 12:39 pm

It's hard not to over do when you're feeling well. You're doing an amazing job.

Your daughter is improving each time, she's doing great! Hope your son has a great game today and gets some good time on the field. Happy Saturday!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

NHMike
Posts: 2272
Joined: Fri Jul 21, 2017 3:43 am

Re: Liver has been chopped!!

Postby NHMike » Sat Sep 14, 2019 12:48 pm

I see the desire to return to normal as being really strong in many people here and in other places - that have had major setbacks. I think that drive to get things done provides us with hope that we will get there and helps with the recovery process.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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