Rectal pain? From the tumor?

Please feel free to read, share your thoughts, your stories and connect with others!
Marie25
Posts: 40
Joined: Tue Aug 20, 2019 9:32 am

Rectal pain? From the tumor?

Postby Marie25 » Tue Sep 03, 2019 10:38 am

DH has recently been having rectal pain which we assume is from the tumor. He is trying to manage it with meds and rest. He told the doctors and they didn't say much. Does anyone have advice on what can help manage the pain? Or know if it means anything, like is the tumor growing/spreading? His next scan isn't untill the end of November to see if the chemo helped. His first round of chemo started 8/29.
Supporter to my husband
Rectal adenocarcinoma
Folfox 8/2019
Short Course Radiation January 2020
Surgery January 2020
T3 N0 stage 2A
0/42 lymph nodes

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal pain? From the tumor?

Postby NHMike » Tue Sep 03, 2019 4:23 pm

Is it pain from pushing when going to the bathroom or is it just pain randomly through the day? I definitely had the former and maybe the latter. I was rather beside myself bugging the medical staff with the comment that it seemed to be getting bigger and bigger. They didn't offer any solutions to the actual problem - I think that they suggested Miralax and offered painkillers. Two to three weeks into the Chemo and Radiation it began to shrink and my concerns about the size of the tumor decreased as I felt it less. It's not nice going through it but things get better once you're into the chemo and radiation and the tumor starts to shrink.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Marie25
Posts: 40
Joined: Tue Aug 20, 2019 9:32 am

Re: Rectal pain? From the tumor?

Postby Marie25 » Tue Sep 03, 2019 7:03 pm

NHMike wrote:Is it pain from pushing when going to the bathroom or is it just pain randomly through the day? I definitely had the former and maybe the latter. I was rather beside myself bugging the medical staff with the comment that it seemed to be getting bigger and bigger. They didn't offer any solutions to the actual problem - I think that they suggested Miralax and offered painkillers. Two to three weeks into the Chemo and Radiation it began to shrink and my concerns about the size of the tumor decreased as I felt it less. It's not nice going through it but things get better once you're into the chemo and radiation and the tumor starts to shrink.


Thanks for the response. It is on and off throughout the day he says. I'm glad it shrunk for you and hope you continue doing good!
Supporter to my husband
Rectal adenocarcinoma
Folfox 8/2019
Short Course Radiation January 2020
Surgery January 2020
T3 N0 stage 2A
0/42 lymph nodes

Rock_Robster
Posts: 1027
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: Rectal pain? From the tumor?

Postby Rock_Robster » Tue Sep 03, 2019 9:34 pm

I also had some rectal pain/discomfort prior to starting treatment, which thankfully went away after the first 2-3 rounds of chemo. The subsequent radiation also did a number on the tumour - completely inactive on the PET before surgery. Hopefully your husband gets similar relief soon!
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev
3/24 VAXINIA (CF33 + hNIS) trial

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Rectal pain? From the tumor?

Postby justin case » Sat Sep 07, 2019 9:56 am

If he already went through radiation, as the tumor is tearing away it can feel like there is glass coming out sometimes. it will subside. On the other hand some people think that enough chemo will do the trick, and try to avoid radiation. One fellow I was doing chemo with tried to avoid radiation, and by the time he decided to get it, he had to be wheeled into the Radiation facility as he could no longer walk by himself.
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal pain? From the tumor?

Postby NHMike » Sat Sep 07, 2019 10:19 am

justin case wrote:If he already went through radiation, as the tumor is tearing away it can feel like there is glass coming out sometimes. it will subside. On the other hand some people think that enough chemo will do the trick, and try to avoid radiation. One fellow I was doing chemo with tried to avoid radiation, and by the time he decided to get it, he had to be wheeled into the Radiation facility as he could no longer walk by himself.


Radiation will kill anything.

Chemo is not 100% guaranteed to kill tumor cells or shrink the tumor.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Rectal pain? From the tumor?

Postby justin case » Sun Sep 08, 2019 11:58 am

NHMike wrote:
justin case wrote:If he already went through radiation, as the tumor is tearing away it can feel like there is glass coming out sometimes. it will subside. On the other hand some people think that enough chemo will do the trick, and try to avoid radiation. One fellow I was doing chemo with tried to avoid radiation, and by the time he decided to get it, he had to be wheeled into the Radiation facility as he could no longer walk by himself.


Radiation will kill anything.

Chemo is not 100% guaranteed to kill tumor cells or shrink the tumor.

Being poisoned, is not at all fun. 9rounds of Folfox, 6 of them with radiation. was not fun but I've been alive for almost 8 years since that treatment . 12 more just 5 FU.
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 126 guests