Liver has been chopped!!

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Koreysue
Posts: 108
Joined: Mon Apr 30, 2018 2:36 pm

Re: Liver has been chopped!!

Postby Koreysue » Thu Aug 29, 2019 6:03 pm

Awesome to hear you are on the road to recovery, and it is smooth so far. :D
Ksue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

peanut_8
Posts: 2334
Joined: Sun May 25, 2014 1:31 pm

Re: Liver has been chopped!!

Postby peanut_8 » Thu Aug 29, 2019 6:51 pm

Amy, you have such a delightful attitude.
Hope your recovery continues to go smoothly and that you get back to your family really soon.
I'm sure all those kids, dogs and your DH won't be the same without you.
Best Wishes,
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Thu Aug 29, 2019 7:27 pm

Yup I'm on solids. Had grilled chicken breast, baby carrots, green beans, a roll and a chocolate chunk cookie.

It was all yummy!!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

TinaFish
Posts: 178
Joined: Sun Jul 21, 2019 10:11 am

Re: Liver has been chopped!!

Postby TinaFish » Fri Aug 30, 2019 2:06 pm

Congrats!! Best of luck with your recovery!
F 45, single mother to son, 7 and daughter, 3
DX: stage 4 Rectal Cancer June 2019
Tumor Location: ? cm above anal verge
Tumor type: Adenocarcinoma
Tumor size: 5 cm
Tumor grade: ?
TNM code: ?
Stage : Stage IV-B
# of cancerous lymph nodes: ?
Mets: Numerous mets to liver, lungs
CEA: 22 in July; 11 as of August 15, 7 as of Sept 20
MSI status: MSS
KRAS/BRAF status: KRAS mutation
surgery: TBD
Ostomy surgery: TBD
Radiation therapy: TBD
Chemotherapy : CAPEOX+Avastin, 6 cycles, with CT scans after 3rd and 6th cycle.

User avatar
juliej
Posts: 3048
Joined: Thu Aug 05, 2010 12:59 pm

Re: Liver has been chopped!!

Postby juliej » Fri Aug 30, 2019 3:44 pm

AmyG wrote:This post brought to you by all the lovely drugs they keep giving me.

Yep, love those drugs!!! :D :D :D

Congratulations on a successful liver resection! It sounds like you're doing very well. Walking and eating lots of protein will help you heal faster.

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

DarknessEmbraced
Posts: 3348
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Liver has been chopped!!

Postby DarknessEmbraced » Sat Aug 31, 2019 10:33 am

I'm glad your surgery went well and I hope your recovery goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Sat Aug 31, 2019 12:28 pm

They are talking about letting me go home tomorrow. I've showered, I've walked, I've done the stupid breathing thing. I can pee by myself. I guess if they load me up with drugs I can try to take it easy at home. That's going to be the hardest part. I need to sit my ass still and heal!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Rock_Robster
Posts: 340
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Liver has been chopped!!

Postby Rock_Robster » Sat Aug 31, 2019 8:37 pm

AmyG wrote:They are talking about letting me go home tomorrow. I've showered, I've walked, I've done the stupid breathing thing. I can pee by myself. I guess if they load me up with drugs I can try to take it easy at home. That's going to be the hardest part. I need to sit my ass still and heal!

Congrats Amy! Well done. First 2 weeks after the liver op were definitely the hardest for me; it rapidly improved after that. I was pretty tired for another few weeks though. Finding a comfortable sleeping position was a big one - I created a sort of pillow fort on the bed and slept on it, which was fun. Other than that, I gather livers grow back in about a month so you won’t even miss it soon! :D
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed liver spot
08-11/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 5
12/19 - Planned liver resection #2 & stoma reversal

Lee
Posts: 5967
Joined: Sun Apr 16, 2006 4:09 pm

Re: Liver has been chopped!!

Postby Lee » Sat Aug 31, 2019 8:57 pm

Keep up the awesome job.

While I did not have my liver removed, following my surgery to remove my tumor, I could no feel things as well (bladder wise) as I did prior to surgery, I remember going to the bathroom every few hours weather I needed to or not. I would even get up during the night just to pee. after a few months, everything was fine.

Just remember to keep walking, walking, walking.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Sun Sep 01, 2019 5:19 pm

So. Guess who got out of the hospital? It's me!!!

Waiting on the pharmacy to fill all my prescriptions then I'm going home. Currently in the car, holding a sleeping baby. I didn't want to wander around Walmart in my jammy pants. :lol: I missed this baby so much. You can tell he missed his mommy.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Gravelyguy
Posts: 228
Joined: Thu Jul 05, 2018 6:03 pm

Re: Liver has been chopped!!

Postby Gravelyguy » Sun Sep 01, 2019 6:52 pm

That is awesome! Now take it easy and enjoy your family!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Liver has been chopped!!

Postby AmyG » Mon Sep 02, 2019 10:25 am

First night home, not bad. Set an alarm so I didn't miss an oxy dose. That doesn't do anything for me but help with pain. I don't get a high or any enjoyment out of it. I honestly don't get the attraction, why do people get hooked on this then move to heroin? :? I'm assuming my dose isn't high enough?

They have me on a muscle relaxer and something for nerve pain as well as taking tylenol. Oh, and I have to shoot up my belly with a blood thinner for the next month. :roll:

Overall, I feel pretty good. I need to figure a better way to get out of our bed at night, I want to use nothing but abs, those don't work quite yet! :lol: I need to make sure I'm not lifting Nicholas, as he weighs much more than a gallon of milk. That's my weight restriction. I can drive if I feel up to it and haven't taken an oxy. My husband is off all week, so I don't HAVE to do anything. Just hold a fat boy!

And omg these dogs. You'd think I was gone 4 years instead of 4 days!! A bit of sad news: my bird just up and died on Saturday. Was fine, then just wasn't. No idea what happened to him. My 14 year old held him as he passed, he's getting buried today. My poor little chicken nugget was only 5 months old. The point of getting him was so I could outlive him. I won, but it feels like cheating! :oops:

Anyway, that's what's going on with me today!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

NHMike
Posts: 2264
Joined: Fri Jul 21, 2017 3:43 am

Re: Liver has been chopped!!

Postby NHMike » Mon Sep 02, 2019 11:13 am

AmyG wrote:First night home, not bad. Set an alarm so I didn't miss an oxy dose. That doesn't do anything for me but help with pain. I don't get a high or any enjoyment out of it. I honestly don't get the attraction, why do people get hooked on this then move to heroin? :? I'm assuming my dose isn't high enough?

They have me on a muscle relaxer and something for nerve pain as well as taking tylenol. Oh, and I have to shoot up my belly with a blood thinner for the next month. :roll:

Overall, I feel pretty good. I need to figure a better way to get out of our bed at night, I want to use nothing but abs, those don't work quite yet! :lol: I need to make sure I'm not lifting Nicholas, as he weighs much more than a gallon of milk. That's my weight restriction. I can drive if I feel up to it and haven't taken an oxy. My husband is off all week, so I don't HAVE to do anything. Just hold a fat boy!

And omg these dogs. You'd think I was gone 4 years instead of 4 days!! A bit of sad news: my bird just up and died on Saturday. Was fine, then just wasn't. No idea what happened to him. My 14 year old held him as he passed, he's getting buried today. My poor little chicken nugget was only 5 months old. The point of getting him was so I could outlive him. I won, but it feels like cheating! :oops:

Anyway, that's what's going on with me today!


Oxy made me feel disoriented and I didn't like it so I didn't get the prescription filled.

Sleeping on a recliner with a lever can make getting up easier as you use your arm instead of your abs. Sleeping on a triangular wedge can make things easier too.

It sounds like you're doing great after a tough surgery.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

itsalexander
Posts: 2
Joined: Mon Sep 02, 2019 7:09 pm

Re: Liver has been chopped!!

Postby itsalexander » Mon Sep 02, 2019 7:13 pm

Hows it going now?

tater
Posts: 113
Joined: Wed Jul 19, 2017 5:53 pm

Re: Liver has been chopped!!

Postby tater » Mon Sep 02, 2019 9:28 pm

Sounds like you are kicking butt and taking names. Happy healing.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18


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