Postby boxhill » Thu Aug 15, 2019 7:43 pm
Hey, Vana3, welcome. I wrote a reply that I seem to have accidentally deleted.
To summarize, you mention that you are not Lynch, which leads me to wonder if you were tested for it because your tumor was dMMR, which means you are likely to be MSI. If so, you might want to look into studies where you could get immunotherapy as a first-line drug.
If you are KRAS wildtype, you could benefit from Vectibix or Erbitux along with one of the chemo regimens, folfox, folfiri, or folfoxiri.
If you know you KRAS, BRAF, and MSS/MSI status, add them to your signature. If not, get copies of or access to the reports.
I would strongly suggest getting a second opinion at a major cancer center. Any good oncologist should be on board with that. Mine sent me to Dana Farber. I'd also suggest going for the kind of doctor ginabewell describes. Someone who who think is aggressively going to try to get you to NED/cure you.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED