jpouch rectal pains

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Joined: Tue Nov 01, 2016 8:13 am
Location: FL

jpouch rectal pains

Postby Maelleous » Thu Aug 08, 2019 8:38 am

Getting close to 3 years NED (end of this year.) I've been doing great. I go through spells with frequency when I try and be healthier. I fell off the wagon with a super healthy diet for a while and then when I move back to a high fiber diet I get a lot of frequency and recently had a few boughts of frequency that led to rectal pain. The bowel movements have returned to normal in frequency etc, but the dull rectal pain has been pretty bad for a few days. I used some hemorrhoid cream which helped but this morning it hurts again after a harder stool. I had it checked when I had this issue about 6 months ago and everything was fine. I am due a colonoscopy in 3 months but debating if I should get this checked out now or just wait. My gut is thinking it is hemorrhoids and inflammation at the scar tissue, but still always worried about these things. No blood or anything.

Anyone have similar things with their jpouch years in? Thanks!
M 35 yr
DX Rectal Cancer, 10/16 (symptoms Feb 2016)
Dx stage 2 - Surgery Oct 25 201 Loop ileo w/ j-pouch
Close margins within 1mm
9/38 lymph nodes involved on path / Stg IIIc,pT4, pN2 B, p.M0. MSS, K‐ras, NRAS, no mutation
Started Folfox - 3rd Treament, Dec 30th 2016 Cardiac Arrest - Lucky to be part of the 6% to survive!
S-ICD installed / Port Removed
Vaccine Clinical trial at UPMC - last shot June 2017
Reversal 8/1/17 - Praying this is it!
Still NED

Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: jpouch rectal pains

Postby teachpdx » Mon Aug 12, 2019 3:10 pm

I had a lot of pain post surgery, etc that lasted for years. I had an adhesion that took about 3 years to go away - with a great deal of diligence on my part. Just recently getting to the point where I can sit for extended periods of time without pain - almost 7 years out.

All I can say is to stick with it and notice if you have pain at other times and how long the pain lasts. I used to have a threshold and when I hit it I needed to lay down and let my ass rest. Sometimes it wad a whole day. Hope you have better luck.
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

Posts: 2498
Joined: Fri Jul 21, 2017 3:43 am

Re: jpouch rectal pains

Postby NHMike » Thu Aug 15, 2019 5:05 pm

I don't have a jpouch but I do have some aches when sitting for a very long time.

I'm in my home office right now and the chair has the thick cushion with the cutout at the back that I used when I had radiation. A specialized cushion could make life a little easier if you need to sit at home a lot of drive long distances.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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