Feeling nervous, that time again

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Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Feeling nervous, that time again

Postby Hopegirl » Wed Jul 10, 2019 2:12 am

Hi everyone! It’s been awhile since I post anything but I come here every other night to read. I have my next scan this Friday, and feeling of course scared :(
Sigh! Hasn’t been easy not thinking about it . I hope to stop worrying so much and all the time soon . Please pray for clear scan. Thank you
Diagnosed 10/11/17 at 46 years old . Now 48,4 kids 26,23, 13, 11
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
Pray for NED Always

stu
Posts: 1193
Joined: Sat Aug 17, 2013 5:46 pm

Re: Feeling nervous, that time again

Postby stu » Wed Jul 10, 2019 3:57 am

Certainly will.

Here’s to good news and reduced anxiety.

Take care,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
juliej
Posts: 3048
Joined: Thu Aug 05, 2010 12:59 pm

Re: Feeling nervous, that time again

Postby juliej » Thu Jul 11, 2019 7:36 pm

I'll be thinking of you on Friday, Hopegirl, and sending lots of prayers for another clear scan!!!

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

natelaugh
Posts: 73
Joined: Wed Apr 03, 2019 11:40 pm

Re: Feeling nervous, that time again

Postby natelaugh » Thu Jul 11, 2019 10:12 pm

Hi,

I noticed from reading people signature on here, when CEA is below 1.0, usually there is not detection of cancer. Good Luck!!

nate.
Caregiver to 80M
DX:CC,RC,desc
11/2018 rightPain
1/19/19 scopy,path
1/23 CTscan
2/19 surgery
2/26-2/28 NGTube
2/28-3/14 TPN bc ileus
3/2 2nd surgeryCloseOpenWound
3/4-3/28 woundVac
size: 6cm Adenocarcinoma
grade Poorly
Stage IIIC T3N2aMx
PositiveLymph:5of28
BaselineCEA:68
LVI:Y
PNI:N
Surgical margins:clear
MSI:MMR (MLH1, MSH2, MSH6, PMS2) Intact nuclear expression
Lynch status:N
Laparascopic, partial colectomy
CEA:3/28/19 2.8
Chemo:4/16/19-9/17/19 5FU,12cycles,every 14days,leucoverin,zofran,Dexamethasone

User avatar
SilverWedding
Posts: 66
Joined: Sat May 18, 2019 5:54 am
Facebook Username: Cynthia Harding Marshall

Re: Feeling nervous, that time again

Postby SilverWedding » Thu Jul 11, 2019 11:20 pm

Prayed for you!
5/19 - DH - 50s, RC 5+cm at dentate line extending to rectal vau
6/19 - Neoadjuvant Xeloda with radiation 6 weeks
9/19 - Restorative Proctectomy, J-Pouch Coloanal Anastomosis, Loop Ileostomy with Appendectomy
10/19 - ypT3N2aM0
10/19 - Adenocarcinoma, moderately differentiated. Deep ulcerated 2.0 cm. Stage 3B with 6/22 lymph nodes positive
Next up: 4 months chemo suggested

Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Re: Feeling nervous, that time again

Postby Hopegirl » Fri Jul 12, 2019 2:19 am

Thank you so much everyone.
Diagnosed 10/11/17 at 46 years old . Now 48,4 kids 26,23, 13, 11
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
Pray for NED Always

boxhill
Posts: 355
Joined: Fri Apr 06, 2018 11:40 am

Re: Feeling nervous, that time again

Postby boxhill » Fri Jul 12, 2019 9:55 am

Best of luck!

I hope that you can get your results today, rather than sweating it out over the weekend, and that the scan continues to be clear. :)
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

Punky44
Posts: 360
Joined: Mon Oct 01, 2018 4:29 pm

Re: Feeling nervous, that time again

Postby Punky44 » Fri Jul 12, 2019 10:16 am

Praying for you!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Re: Feeling nervous, that time again

Postby Hopegirl » Fri Jul 19, 2019 6:43 pm

Hi everyone! Great news . Even though They sent my results since last Friday . But I didn’t want to open it or look at it til I saw my oncologist . Was too nervous, in case I didn’t understand it . Well Saw my oncologist today and my ct scan is CLEAR. Feeling so happy and grateful. Thank you so much everyone for your prayers . Next scan is not for another year . Is that normal to wait for another year for scan. Thanks
Diagnosed 10/11/17 at 46 years old . Now 48,4 kids 26,23, 13, 11
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
Pray for NED Always

Beckster
Posts: 392
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Feeling nervous, that time again

Postby Beckster » Fri Jul 19, 2019 7:59 pm

Hopegirl wrote:Hi everyone! Great news . Even though They sent my results since last Friday . But I didn’t want to open it or look at it til I saw my oncologist . Was too nervous, in case I didn’t understand it . Well Saw my oncologist today and my ct scan is CLEAR. Feeling so happy and grateful. Thank you so much everyone for your prayers . Next scan is not for another year . Is that normal to wait for another year for scan. Thanks


Congrats! It is a wonderful feeling, isn't it? I think that every onc follows different protocols. I am stage 2a and get scans every 6 month for 3 years instead of 2. I asked why and he said that is his protocol. I have one more scan in Dec before I go to yearly...
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6
Clear Colonoscopy 10/17 :D

DarknessEmbraced
Posts: 3348
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Feeling nervous, that time again

Postby DarknessEmbraced » Sat Jul 20, 2019 10:45 am

That's wonderful news! :) I get scans yearly. I was diagnosed as stage 2a in 2014.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19

k0chr
Posts: 20
Joined: Wed Jun 05, 2019 5:08 pm

Re: Feeling nervous, that time again

Postby k0chr » Sun Jul 21, 2019 6:26 pm

Great news! Hearing good results always gives :D . (I'm a noob here, so I can't help on the frequency of scans.)
DX: 54
05/24/19 DX: CC rectosigmoid adenocarcinoma
06/07/19: laparascopic
5.8cm tumor, clear margins
G2 IIIA T2N1AM0
1/10 positive
07/08/19: starting FOLFOX, 12 cycles
08/14/19: gallbladder removed
08/19/19: DVT left internal jugular vein, subclavian, & axillary veins, daily Lovenox injections

jmn
Posts: 48
Joined: Sat Aug 11, 2018 8:20 pm
Location: New York/Philadelphia

Re: Feeling nervous, that time again

Postby jmn » Sun Jul 21, 2019 8:41 pm

How sweet it is! I had my first post-chemo scan in May and I remember the feeling of relief that swept over me when they told me there was no evidence of disease. Congrats to you! :D
DX: CC, 7-9-18 @ age 61, male
Severe anemia (4.5 g/dl), 5-11-18; colonoscopy, 6-29-18
Lap-assisted right hemicolectomy, 7-16-18
G2, moderately differentiated adenocarcinoma in cecum, 4.2 x 3.7 x 0.7 cm
Stage IIB, pT4aN0 (first pathology DX: pT3N0)
0/24 lymph nodes, LVI present, PNI present, surgical margins clear, MSS
CEA: 3.0 (pre-op, 7-10-18); 0.7 (post-op, 8-8-18)
TX: Xeloda (capecitabine) monotherapy, 10-16-18 to 4-21-19
CEA: 4-19, 3.4; 5-19, 3.0; 7-19, 3.0
NED: 5-28-19 :D
Clear colonoscopy, 7-15-19 :D

Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Re: Feeling nervous, that time again

Postby Hopegirl » Mon Jul 22, 2019 3:19 am

Thank you everyone :D
Diagnosed 10/11/17 at 46 years old . Now 48,4 kids 26,23, 13, 11
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
Pray for NED Always

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Feeling nervous, that time again

Postby AmyG » Mon Jul 22, 2019 10:07 am

Look at your signature, you're a rockstar!

Glad you had great news!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3


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