LAR syndrome sufferers -- beware of sucralose/Splenda

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chrisca
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Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

LAR syndrome sufferers -- beware of sucralose/Splenda

Postby chrisca » Sun Jul 07, 2019 4:03 pm

I've posted here before that sugar alcohols (sorbitol, mannitol, erythritol, maltitol, and xylitol) can aggravate LAR syndrome by causing gut cramping. They increase stool fragmentation & result in longer, more painful BMs with more stress on the anorectal tissue, aggravating hemorrhoids & causing rectal bleeding. Add to this list sucralose. It isn't same chemically but is instead a chlorinated sucrose molecule. However, after inadvertently consuming it in some "reduced sugar" dried cranberries, I can vouch that it also has a similar effect. Try eliminating sucralose if you have LAR syndrome & see if it helps.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 8 years

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CRguy
Posts: 10038
Joined: Sun Feb 10, 2008 6:00 pm

Re: LAR syndrome sufferers -- beware of sucralose/Splenda

Postby CRguy » Mon Jul 08, 2019 8:53 pm

Just a quick bump up here :

AND some are toxic to pets Xylitol and Your Dog: Danger, Paws Off
AND cause concerns for human health and insulin resistance Evidence suggesting artificial sweeteners may be harmful should give us pause

AND my fave reason for avoiding them all ? ..... they ALL taste like shit :twisted:
seriously, any artifcial sweetener tastes like crap to me, so maybe I am blessed with a "cat like" sense of taste avoidance ????
Sugar alcohols are likely just as problematic for cats, as dogs ... BUTT cats are too finicky and just won't eat the stuff.

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

NHMike
Posts: 2338
Joined: Fri Jul 21, 2017 3:43 am

Re: LAR syndrome sufferers -- beware of sucralose/Splenda

Postby NHMike » Wed Jul 10, 2019 7:56 am

I forward this to my son for his comments.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Bob_Weiss
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Joined: Sun Apr 11, 2010 11:23 am
Location: Brooklyn, NY

Re: LAR syndrome sufferers -- beware of sucralose/Splenda

Postby Bob_Weiss » Sun Jul 14, 2019 3:34 pm

I have eliminated all the artificial sweeteners and now use plain sugar (sucrose) only. Also, I have eliminated olive oil which would cause uncontrollable diarrhea and many embarrassing moments. Unfortunately, it took me a few years before I realized it was the cause of my severe problem.
Stage 3 R/C -1 node+ ( 7/09)
5 wks radiation, 2 wks chemo: 5FU (8-9/09)
Rectal surgery: tumor removal (11/09)
10 rounds Xeloda: 3000mg/daily 1 wk on/1 wk off (1/10-6/10)
Supplements: Aspirin, Calcium, Vit. D3
03/27/17: 7+ yrs. since surgery--still NED


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