AND THIS IS HAPPENING!
I found out July 22 I will not begin new treatment plan with Cetuximab. I had 2 biopsies - one with sample from the tumor inside my colon, one with a sample from the mass outside my colon. One is type wild and one is mutated. (Not sure which one is which.) Good news is my last CEA was 2.7, and the mass is down to 7.8cm but the small nodules around my abdomen have not disappeared.
So.... over a span of 8 days my life will look like this -- and yes, that is 2 bowel preps in less than a week
Appointment with GI is July 31.
Colonoscopy is August 2.
IVC Filer placement scheduled for morning of August 5.
Stoma Mapping is afternoon of August 5.
Pre-op appointment with surgeon afternoon of August 5.
Phone interview with anesthesiology morning of August 6.
Surgery begins morning of August 7.
Add to this:
Husband out of town all next week, returning home to drive to Boston where he'll stay until August 15.
Daughter needs to be picked up from summer job in NH on August 16.
Daughter needs to move in to her college room August 22. She's a freshman, so this is a big deal.
We live 350 miles from Boston.
What are my chances of being discharged before August 15? And going home?
The surgery is major -- CRS/HIPEC -- and includes a complete hysterectomy (ovarian mass), removal of sigmoid, possibly removal of a small piece of liver, placement of ostomy, and whatever else I haven't been told yet. I'm 60, and in good health other than this cancer. Only drug I take is Lovenox/Savaysa as there is one small clot on one lung (hasn't changed since October). I've managed to gain 15 lbs since last June, and can walk a mile in under 30 minutes without breaking a sweat.
Right now I am bummed I might miss this part of my daughter's life. I am fine with sitting in car, or whatever, and just watching but really want to be there. If I am not discharged so I can at last go home, I am going to have to go live with my mother-in-law until my husband can come back and get me at the end of July.
06/2018 KRAS negative for mutation; PDL1 negative, CEA 22.7
07/11 (ONC#1) FOLFOX started; 07/25/2018 FOLFOX+Avastin started
09/05 (ONC#2) Avastin discontinued
10/03 CT-scan showed no improvement
10/04 Appt w/ONC for 2nd opinion, change to FOLRFIRI due to increase in small nodules in abdomen
10/16 FOLFIRI+Avastin; Neulasta; Savaysa (Lovenox) treatment started
02/11 (ONC#3) Avastin discontinued
04/29 CT-scan showed both masses decrease to 8cm (from approx 12cm in June 2018)
05/06 CEA 3.7