Bucket List

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justin case
Posts: 4258
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Bucket List

Postby justin case » Tue Jul 02, 2019 7:12 pm

In the great words of my cousin , you only live once, and then she corrected herself and said , you live everyday, and only die once !

Have a great adventure , Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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wwroam
Posts: 758
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: Bucket List

Postby wwroam » Tue Jul 02, 2019 7:29 pm

I've always said that if I'm seen driving a Ferrari the sh#t has hit the fan.
In 2007 I went and bought a Breitling Navitimer.
In 2017 I bought a BMW M240i ( a beast in its own right). With 1600km on the clock I wrote it off. Courtesy of Allianz I got a new replacement.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

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SilverWedding
Posts: 71
Joined: Sat May 18, 2019 5:54 am
Facebook Username: Cynthia Harding Marshall

Re: Bucket List

Postby SilverWedding » Wed Jul 03, 2019 6:29 pm

Pyro - This was two years ago. When I see that line-up again, without my dad this time, I’ll think of you in that background, and that the thrill up there was merely a glimpse of Heaven. Just prayed for a miracle for you and my husband and the “BrokenWings” writer on here. We need miracles.

https://photos.google.com/search/_tra_/ ... aizeK3bB6W
DH, 56, Sigmoid & rectum
Adenocarcinoma 2cm
 G2: Moderately differentiated
T3N2aM0
Stage IIIb
LN 6/22
5/19 Baseline CEA value - 18.9
Lymphovascular invasion (LVI): present
Perineural invasion (PNI): not identified
Surgical margins: proximal -negative; distal - negative 1.5cm; circumferential - negative 1mm)
MSI status: Waiting‬
Lynch status: ?
KRAS/BRAF: ?
Open Restorative Proctectomy, J-Pouch Coloanal Anastomosis, Loop Ileo w/Appendectomy
Neo-adjuvant Xeloda/radiation
Adjuvant Chemo: to begin 11/19

WarriorSpouse
Posts: 205
Joined: Tue Aug 16, 2016 9:02 pm

Re: Bucket List

Postby WarriorSpouse » Thu Jul 04, 2019 11:57 am

Pyro,

Thank You for sharing and leading us all to a good and purposeful life. We may not be able to control the day we arrive or depart this great earth, but we do have control over how we all LIVE each day!

I know the news is difficult, but as you know being a fighter jock, you can not control much more than the six inches in front of your face. Enjoy what you have in the moment. Your leadership here is very much appreciated through your sharing of this with us. Memories are made everyday you are walking and talking... Make them count!

All the best and Happy Independence Day! (..No offense Stu, we love our British friends here!)
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: Bucket List

Postby stu » Thu Jul 04, 2019 12:38 pm

Ha . No offence taken . You all have a wonderful day . Maybe one day I will cross the pond for a holiday .

Have a great day ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Thu Jul 04, 2019 1:03 pm

SilverWedding wrote:Pyro - This was two years ago. When I see that line-up again, without my dad this time, I’ll think of you in that background, and that the thrill up there was merely a glimpse of Heaven. Just prayed for a miracle for you and my husband and the “BrokenWings” writer on here. We need miracles.

https://photos.google.com/search/_tra_/ ... aizeK3bB6W


Maybe my google-fu isn’t working, could you explain the photo?

Thanks for the words everyone, it helps.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

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CRguy
Posts: 10038
Joined: Sun Feb 10, 2008 6:00 pm

Re: Bucket List

Postby CRguy » Thu Jul 04, 2019 8:34 pm

No harm, No foul
I believe you would need an actual google account login to view that pix.

Oh by the way
The Ferrari IS STOKE my friend !
Flying the General Dynamics F-16 Fighting Falcon is RAD

closest I ever got was a simulator AND even that was KEWL !!!!

WE are your ground crew here... AND
We WILL keep you flying !

WORD !

Cheers and Harmony Bro'
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

hawkowl
Posts: 125
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: Bucket List

Postby hawkowl » Fri Jul 05, 2019 3:15 am

Beautiful car! My bucket list priority was travel, and although I cancel more trips than I take these days I still get a kick out of planning them. Enjoy your ride!!
Dx 12/2014 T3N2MX (distant LPLN) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7
10/2017 CEA remains in normal range (1.4), scans stable.
6/2018 CEA still normal.
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

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Green Tea
Posts: 202
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Bucket List

Postby Green Tea » Fri Jul 05, 2019 4:15 am

SilverWedding wrote:Pyro - This was two years ago. When I see that line-up again, without my dad this time, I’ll think of you in that background, and that the thrill up there was merely a glimpse of Heaven. Just prayed for a miracle for you and my husband and the “BrokenWings” writer on here. We need miracles.


Image

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Fri Jul 05, 2019 4:29 am

I am familiar with high flight, I taught pilot training for 4 years in the T-38 and every graduation the poem is sung like a song. Thanks Green Tea.

I don’t see why this couldn’t be the sites bucket list thread, can’t really take ownership of a website!
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Fri Jul 05, 2019 8:34 am

The other bucket list item was to go to the beach with my family, my sister, her husband and 8 kids (no typo) met us at the Catamaran resort in San Diego. I will go to this hotel again, it was epic. Anywho, here’s a pic of me and the wife, my rock. Check out the pic I put in “Take me away” thread as well.

Imagea
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

Pyro70
Posts: 155
Joined: Mon Jan 21, 2019 4:25 pm

Re: Bucket List

Postby Pyro70 » Sat Jul 06, 2019 9:16 am

In the spirit of bucket list and cancer patients getting out and doing stuff, here is a picture of my wife and I doing our first joint kiteboarding downwinder last week. Before this picture was taken, I had spent a 11 days in the hospital with a neutropenic fever and all kinds of things going wrong. I left the hospital with urinary retention (this is terrible) and very weak after losing another 6lbs I couldn’t afford to lose. My brother had planned to rent a beach house that week and told me in the hospital that I need to get better to join them. My wife and I scoffed at him saying we “need to be realistic”. But when I got out of the hospital, as soon as I could pee a little bit, we took the 14 hour road trip to North Carolina. I thought I’d spend the week just sitting on the beach. But when my wife went kiteboarding the first day, I knew I couldn’t just sit there and not get on the water myself! To my surprise, my body didn’t fail me and stepped up to the plate. Now I’ve been down here kiting in the waves and doing long downwinder for close to 2 weeks. I think all the physical activity has made me a lot stronger. Lesson learned: you won’t get better in your bed. Use whatever time you have left to do as much as possible - you might be surprised in what you can still do!

Image

p.s. My bucket list item has been to teach my wife kiteboarding. We started 2 years ago in Egypt after my diagnosis and before my first surgeries. It makes me very happy to see her on the water now, really loving it, and knowing it’s something she’ll continue to do without me. My goal has been to get her to ride in the waves before I peace out, but that may need to be a stretch goal...
Dx Jan 2017 stage IVB w/ PC age 35
FOLFOX
SEP 17 HIPEC 1, anastamosis leak
XELODA
MAR 18 HIPEC 2
JUN 18, ileo reversal and 2nd anastamosis leak

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: Bucket List

Postby stu » Sat Jul 06, 2019 10:26 am

Enjoying watching the “Pryo “ twins squeezing every moment of joy .
The sea looks amazing . I would so love a go of that .
Obviously the car too . Ha .Now I wonder how big they are into sharing !!

Enjoy !

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Bucket List

Postby LPL » Sat Jul 06, 2019 4:46 pm

Pyro wrote:The other bucket list item was to go to the beach with my family, my sister, her husband and 8 kids (no typo) met us at the Catamaran resort in San Diego. I will go to this hotel again, it was epic. Anywho, here’s a pic of me and the wife, my rock. Check out the pic I put in “Take me away” thread as well.

Imagea

Hi Pyro,
What a nice photo of you & your wife :)
Please continue for a looong time with your ”Bucket List” thread.
I’m thinking of Frenchie’s ”The Grim Reaper..” thread, if I remember correct it continued for well over 2 years!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets


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