Bucket List

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SilverWedding
Posts: 45
Joined: Sat May 18, 2019 5:54 am
Facebook Username: Cynthia Harding Marshall

Re: Bucket List

Postby SilverWedding » Mon Jul 01, 2019 7:53 am

Pyro wrote:What a weekend! Lunch at Dukes in Malibu, Arthur Js and Fishbar in Manhattan beach and a few speed limits broken. Most incredible car I’ve ever driven. A bit nerve racking driving around a $350,000 car, but worth it.

To answer a previous question, I was a US Air Force Lt Col and F-16 fighter pilot. I really don’t want to look like I’m bragging, just doing something I always wanted to.

Image


Live every single second this full. I love it and hate it for you at the same time. I’m the girl who grew into a woman that still cries and waves at the F-16 pilots as they taxi down the tarmac at air shows. The Dover one is the best. Thank you for manning that incredible piece of art for our country. I hope every single day you are able to live like this. And I prayed for a miracle that it lasts way longer than anyone thought.
5/19 - DH - 50s, RC 5+cm at dentate line extending to rectal vau
5/19 - No spread to liver/lungs, but 4 swollen lymph nodes
6/19 - Stage III
6/19 - Neoadjuvant Xeloda with radiation 6 weeks

Pyro
Posts: 274
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Mon Jul 01, 2019 9:08 am

Thanks SilverWedding, your post was powerful for me. Top Gun 2 is done filming, if not it’s close, due for release in almost exactly a year. I have friends in the industry, I’m willing to bet I have a pretty good chance of seeing it early.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

Pyro
Posts: 274
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Mon Jul 01, 2019 9:13 am

As long as I’m sharing, this was taken 7 years ago, before I knew I was sick. Better times, obviously I’m the younger guy. I’m touching a 500 lb laser guided bomb.

Image
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

peanut_8
Posts: 2325
Joined: Sun May 25, 2014 1:31 pm

Re: Bucket List

Postby peanut_8 » Mon Jul 01, 2019 9:19 am

What a beautiful car! Congrats. Hope you have a really long time to enjoy it.

Also, thank you for your service.
peanut
Last edited by peanut_8 on Tue Jul 02, 2019 8:00 am, edited 1 time in total.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

AmyG
Posts: 216
Joined: Tue Dec 25, 2018 8:08 pm

Re: Bucket List

Postby AmyG » Mon Jul 01, 2019 9:27 am

Pyro wrote:As long as I’m sharing, this was taken 7 years ago, before I knew I was sick. Better times, obviously I’m the younger guy. I’m touching a 500 lb laser guided bomb.

Image



Is that at Luke? I was born there! Spent my time in a WSA in Minot, ND as well as Elmendorf AK and an ANG base in Oklahoma City. I've spent plenty of time in a security forces truck counting the rivets on your plane. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

Punky44
Posts: 331
Joined: Mon Oct 01, 2018 4:29 pm

Re: Bucket List

Postby Punky44 » Mon Jul 01, 2019 9:41 am

This picture (and car) are awesome!! You need to blow that up poster size on a wall.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Pyro
Posts: 274
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Mon Jul 01, 2019 10:11 am

It’s Tucson airport, Tucson Air National Guard base, I think they just renamed it Morris Air National Guard base or something similar. Our cops were great! The airport isn’t in the best part of town but they always had our backs and were very friendly, I never doubted their willingness to do their jobs.

I have flown at Luke AFB, and around the world for the most part.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Bucket List

Postby LPL » Mon Jul 01, 2019 3:56 pm

Pyro wrote:...Top Gun 2 is done filming, if not it’s close, due for release in almost exactly a year. I have friends in the industry, I’m willing to bet I have a pretty good chance of seeing it early.

Pyro, Love seeing you in that car! :)
The quote above made me wonder? I believe you wrote a while back that you were not a Doctor but that you had played one on TV (or did you say film?). Anyway - is it true? Is that why you have connections? :wink:
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

Pyro
Posts: 274
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Mon Jul 01, 2019 4:02 pm

LPL wrote:
Pyro wrote:...Top Gun 2 is done filming, if not it’s close, due for release in almost exactly a year. I have friends in the industry, I’m willing to bet I have a pretty good chance of seeing it early.

Pyro, Love seeing you in that car! :)
The quote above made me wonder? I believe you wrote a while back that you were not a Doctor but that you had played one on TV (or did you say film?). Anyway - is it true? Is that why you have connections? :wink:


I have a friends who works for a studio as an attorney, by chance, I mean we know who to ask and sometimes that’s half the battle.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

Jannine
Posts: 160
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Bucket List

Postby Jannine » Mon Jul 01, 2019 7:27 pm

Good luck getting an early screening; that would be the best!

I'm sure it's nothing to you but I'm going to take a 3-day RWD rally driving class at Dirtfish this fall. I have driven a Prius for 12+ years, but I grew up with a dad who loved fast cars, and I want to learn how to drive on other kinds of surfaces and play in the dirt. Everyone who knows me has been astonished that I would do something like this; I'm not a big risk taker at all. :) They haven't seen how my Prius complains about my lead foot though. >.> Husband doesn't get it but says "if you want to do it, do it!" 8) So I am doing it!
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

Pyro
Posts: 274
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Tue Jul 02, 2019 3:56 am

Jannine wrote:Good luck getting an early screening; that would be the best!

I'm sure it's nothing to you but I'm going to take a 3-day RWD rally driving class at Dirtfish this fall. I have driven a Prius for 12+ years, but I grew up with a dad who loved fast cars, and I want to learn how to drive on other kinds of surfaces and play in the dirt. Everyone who knows me has been astonished that I would do something like this; I'm not a big risk taker at all. :) They haven't seen how my Prius complains about my lead foot though. >.> Husband doesn't get it but says "if you want to do it, do it!" 8) So I am doing it!


That’s a great idea! My initial idea with an exotic car was the racetrack in Fontana, Ca, you can rent them 5 laps at a time. Unfortunately it would have only given me about 1/2 an hour with the car.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

Pyro
Posts: 274
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Tue Jul 02, 2019 4:08 am

Pyro wrote:
Pyro wrote:
LPL wrote:..Top Gun 2 is done filming, if not it’s close, due for release in almost exactly a year. I have friends in the industry, I’m willing to bet I have a pretty good chance of seeing it early.

Pyro, Love seeing you in that car! :)
The quote above made me wonder? I believe you wrote a while back that you were not a Doctor but that you had played one on TV (or did you say film?). Anyway - is it true? Is that why you have connections? :wink:


No, that was a joke, maybe from a Geico commercial I saw once. I’ve never been paid to be in front of a camera. Don’t take these pics the wrong way, I don’t want to be that Facebook friend that’s fake as hell and try’s to portray a false life on the internet. These two pics above were from good times, good times I’ll remember forever. I’m still a forcefully retired fighter pilot with stage 4 cancer that won’t go away and given 6 months to two years.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

Jolene
Posts: 130
Joined: Wed Jan 23, 2019 10:17 am

Re: Bucket List

Postby Jolene » Tue Jul 02, 2019 10:14 am

Great pic and thread PYRO !!! Its refreshing to discuss about enjoying life and fulfilling bucket list on this column !! Thank you for sharing.

I'm nowhere near your prognosis, but have also been thinking about my bucket list now and again.
Dx @ 39 F, married
Nov 18 - Scope + MRI + CT = Dx of a mid-rectal tumour at T3N1M0 (2cm) 7cm from AV
Dec 18 - CRT, 28 sessions + Capecitabine at 3000mg daily
End Dec 18 - Completed CRT with little side effects
Feb 19 - Second MRI showed a speck of residual tumour - continue to wait
Mar 19 - MRI, PET, sig flex and biopsy ordered to determine being a WW candidate.
Apr 19 - Complete clinical response. Surgery on hold. 6 cycles of Xelox.
Aug 19 - Completed 6 cycles of Xelox. Wait and watch protocol in place !

lovelife789
Posts: 140
Joined: Thu Aug 24, 2017 5:28 am

Re: Bucket List

Postby lovelife789 » Tue Jul 02, 2019 12:01 pm

Just wanna cheer for Pyro. Folfiri is not easy, I'm doing it and really pushing hard. I can't imagine the many rounds you have done.

I keep my fingers crossed for you!!!

P.s. the car really rocks!!!! :P :P
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Mod. differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - 6/30 - NED
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
8/30 - VATs
8/30 - 4/30 - NED
5/28 - uptake seen in 1 x PALN, 1x common iliac, cloudy in Liver
FOLFIRI + Avastin

User avatar
Green Tea
Posts: 202
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Bucket List

Postby Green Tea » Tue Jul 02, 2019 3:20 pm

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Last edited by Green Tea on Wed Jul 03, 2019 11:31 pm, edited 1 time in total.


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