Nine Year Anniversary

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NedPlease
Posts: 545
Joined: Fri Mar 23, 2012 3:56 pm

Nine Year Anniversary

Postby NedPlease » Sat Jun 15, 2019 9:34 am

Hello friends,

I just saw my oncologist for the now annual exam and I’ve cleared the nine year mark since my Stage 4 dx. I wanted to send an optimistic message to all who are doubting the possibility for themselves. Exactly how or why I’m doing so well, I don’t know. I remain cautiously optimistic about the future, but I’m more comfortable expressing my news hoping that others will benefit knowing there really is Stage 4 survivorship.

Blessings,
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Nine Year Anniversary

Postby DarknessEmbraced » Sat Jun 15, 2019 11:03 am

Congratulations! That's wonderful!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Nine Year Anniversary

Postby Lee » Sat Jun 15, 2019 6:28 pm

good to see your post, and CONGRATULATIONS.

MAY you ALWAYS RESIDE in NEDville.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

AmyG
Posts: 216
Joined: Tue Dec 25, 2018 8:08 pm

Re: Nine Year Anniversary

Postby AmyG » Sun Jun 16, 2019 7:42 am

That's amazing. I'm so very happy for you and hope the same for myself!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

Punky44
Posts: 331
Joined: Mon Oct 01, 2018 4:29 pm

Re: Nine Year Anniversary

Postby Punky44 » Tue Jun 18, 2019 6:50 pm

Congratulations!!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: Nine Year Anniversary

Postby Koreysue » Tue Jun 18, 2019 7:24 pm

NedPlease wrote:Hello friends,

I just saw my oncologist for the now annual exam and I’ve cleared the nine year mark since my Stage 4 dx. I wanted to send an optimistic message to all who are doubting the possibility for themselves. Exactly how or why I’m doing so well, I don’t know. I remain cautiously optimistic about the future, but I’m more comfortable expressing my news hoping that others will benefit knowing there really is Stage 4 survivorship.

Blessings,
N


YAY! Congrats to you :D
I love it when I see posts like this. Made my day. So happy for you
Koreysue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

benben
Posts: 310
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Nine Year Anniversary

Postby benben » Tue Jun 18, 2019 8:47 pm

Huge congratulations to you!

Thank you for posting. It is good inspiration for folks to hear these stories.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
6/19 CT - NED (2 years!)

plastikos
Posts: 330
Joined: Wed Jan 14, 2015 6:09 am

Re: Nine Year Anniversary

Postby plastikos » Thu Jun 20, 2019 5:25 am

NedPlease wrote:Hello friends,

I just saw my oncologist for the now annual exam and I’ve cleared the nine year mark since my Stage 4 dx. I wanted to send an optimistic message to all who are doubting the possibility for themselves. Exactly how or why I’m doing so well, I don’t know. I remain cautiously optimistic about the future, but I’m more comfortable expressing my news hoping that others will benefit knowing there really is Stage 4 survivorship.

Blessings,
N

Wonderful news that gives everyone more hope than you can ever imagine. Huge congrats.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED

User avatar
CRguy
Posts: 9956
Joined: Sun Feb 10, 2008 6:00 pm

Re: Nine Year Anniversary

Postby CRguy » Thu Jun 20, 2019 12:49 pm

Keep on NEDin' homie

Cheers and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

teacher2017
Posts: 244
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: Nine Year Anniversary

Postby teacher2017 » Wed Jun 26, 2019 5:12 am

Thanks for the hope!

Lydia
48 yo female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18
Cea level- 1.5 10/1/18
Cea level- 1.2 12/1/18
Clear scan- 12/5/18
Cea level- 1.1 3/2/19
Clear scan- 3/1/19
Cea level- 1.2 6/2/19
Clear scan- 6/2/19
Colonoscopy - 7/8/19 CLEAR
Still here!!!!!

User avatar
SilverWedding
Posts: 45
Joined: Sat May 18, 2019 5:54 am
Facebook Username: Cynthia Harding Marshall

Re: Nine Year Anniversary

Postby SilverWedding » Sat Jun 29, 2019 6:24 am

Needed this. Thank you.
5/19 - DH - 50s, RC 5+cm at dentate line extending to rectal vau
5/19 - No spread to liver/lungs, but 4 swollen lymph nodes
6/19 - Stage III
6/19 - Neoadjuvant Xeloda with radiation 6 weeks

teacher2017
Posts: 244
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: Nine Year Anniversary

Postby teacher2017 » Sat Jun 29, 2019 7:56 pm

Woohoo! Congrats!!! I’m hoping I’m like you! I had one met too and so far 9 months NED. Praying!

Lydia
48 yo female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18
Cea level- 1.5 10/1/18
Cea level- 1.2 12/1/18
Clear scan- 12/5/18
Cea level- 1.1 3/2/19
Clear scan- 3/1/19
Cea level- 1.2 6/2/19
Clear scan- 6/2/19
Colonoscopy - 7/8/19 CLEAR
Still here!!!!!

hopeful1
Posts: 9
Joined: Wed Jan 21, 2015 5:39 am

Postby hopeful1 » Fri Jul 05, 2019 6:36 am

0

fumaros
Posts: 264
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Nine Year Anniversary

Postby fumaros » Fri Jul 05, 2019 10:00 am

Congratulations...very very good news.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED


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