Our Miss Molly/Karen going into hospice

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Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Our Miss Molly/Karen going into hospice

Postby Maggie Nell » Mon Jun 03, 2019 9:50 pm

Image




Isn't it plain the sheets of moss, except that
they have no tongues, could lecture
all day if they wanted about

spiritual patience? Isn't it clear
the black oaks along the path are standing
as though they were the most fragile of flowers?

...if the doors of my heart
ever close, I am as good as dead.

Every morning, so far, I'm alive. And now
the crows break off from the rest of the darkness
and burst up into the sky-as though

all night they had thought of what they would like
their lives to be, and imagined
their strong, thick wings.

Landscape by Mary Oliver
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

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CRguy
Posts: 9956
Joined: Sun Feb 10, 2008 6:00 pm

Re: Our Miss Molly/Karen going into hospice

Postby CRguy » Sat Jun 08, 2019 12:36 pm

Still thinking of you Karen

Prayers and Harmony

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

bitchslapped
Posts: 1500
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Our Miss Molly/Karen going into hospice

Postby bitchslapped » Sat Jun 15, 2019 10:45 am

Lee wrote:
CRguy wrote:Lee
if there is any feedback / info /.....from Karen
Please let us know
AND let us know if there is anything we can do for her and with her ...

Peace Love and Harmony

CRguy


I have no personal knowledge. On the UOAA website, she said that she was going into hospice and would not be posting anymore. I'm hoping that someone will update, but I'm not going to brother her at this time. I want her to know how she helped so many people. If I should hear anything, I will be glad to update. I could be wrong, but my gut felling she is still with us.

She got C diff and that created a cycle of medical issues. As she put it, her quality of life is not there now. She spend several weeks in the hospital. Her medical team felt she probably would not recover from this cycle of medical issues.

Lee


I have communicated some recently w/Karen & she did give me unqualified permission to share. I just haven't done it. Intend to share a couple of excerpts out of courtesy to forum members who have expressed concern so eloquently. I will briefly say that she had another recent stay in the hospital, is receiving IV antibiotic therapy so not on hospice quite yet (that I know of). And she is lovely, articulate Karen. More later when I have some time.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Our Miss Molly/Karen going into hospice

Postby LPL » Sat Jun 15, 2019 11:24 am

bitchslapped wrote:
Lee wrote:
CRguy wrote:Lee
if there is any feedback / info /.....from Karen
Please let us know
AND let us know if there is anything we can do for her and with her ...

Peace Love and Harmony

CRguy


I have no personal knowledge. On the UOAA website, she said that she was going into hospice and would not be posting anymore. I'm hoping that someone will update, but I'm not going to brother her at this time. I want her to know how she helped so many people. If I should hear anything, I will be glad to update. I could be wrong, but my gut felling she is still with us.

She got C diff and that created a cycle of medical issues. As she put it, her quality of life is not there now. She spend several weeks in the hospital. Her medical team felt she probably would not recover from this cycle of medical issues.

Lee


I have communicated some recently w/Karen & she did give me unqualified permission to share. I just haven't done it. Intend to share a couple of excerpts out of courtesy to forum members who have expressed concern so eloquently. I will briefly say that she had another recent stay in the hospital, is receiving IV antibiotic therapy so not on hospice quite yet (that I know of). And she is lovely, articulate Karen. More later when I have some time.

BS

BS, Thank you so much for your report. I hope hope! that she will get better!!! Please, if you talk to her, send love from me (or from us here - if I’m allowed to speak for others).
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Our Miss Molly/Karen going into hospice

Postby Lee » Sat Jun 15, 2019 4:49 pm

bitchslapped wrote:
I have communicated some recently w/Karen & she did give me unqualified permission to share. I just haven't done it. Intend to share a couple of excerpts out of courtesy to forum members who have expressed concern so eloquently. I will briefly say that she had another recent stay in the hospital, is receiving IV antibiotic therapy so not on hospice quite yet (that I know of). And she is lovely, articulate Karen. More later when I have some time.

BS


Thank you BS for the update on Karen. I miss all you guys postings on the other special thread. I hope and pray that Karen can pull out of this. Please let her know that we are thinking of her, and that many of us do miss her. I pray she is not in pain.

Karen thinking of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Our Miss Molly/Karen going into hospice

Postby mpbser » Sat Jun 15, 2019 5:46 pm

Thank you for the update. I am glad to hear she is getting treated.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

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Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Our Miss Molly/Karen going into hospice

Postby Maggie Nell » Sun Jun 16, 2019 1:53 am

We need some bigger songs.........

I don't do yoga, never tried Pilates
Not many people want me at their parties
Tryna find my place, some place, oh I, oh I, oh I
And I drink a little more than recommended
This world ain't exactly what my heart expected
Tryna find my way someway, oh I, oh I, oh I


https://www.youtube.com/watch?v=KDPW_g2AhAU


My Cancer anthem...what is yours? skypup's thread from 2015
viewtopic.php?f=1&t=49953&hilit=favourite+songs
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Our Miss Molly/Karen going into hospice

Postby HopeForJesse » Mon Jun 17, 2019 7:07 pm

Just wanted to add to the well wishes for Karen and grateful thanks for her many contributions.
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

bitchslapped
Posts: 1500
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Our Miss Molly/Karen going into hospice

Postby bitchslapped » Fri Jun 21, 2019 10:48 am

Sharing excerpts from an earlier email(s) of Karen's as I said I would:

My body is tired beyond tired. I am exhausted
from being less than well for the past 3 years,
a gradual and insidious erosion of health and life.
I am tired of constant pain. No respite. Pain
Changes the basic fabric of one’s sense of self and being. I am ready for rest. It is all OK.

Feel free to share any part of what I
have shared with you with the members of Colon Club. I always felt welcomed by the Colon club.
I will always appreciate the friendships formed and the humanity of people helping people.

(: K :)


Karen's Wishes:
Send out energy and positive prayer that I have a graceful transition when it is my time, NOT for a cure or recovery for which there no is no feasible possibility.
I do not want to merely exist in ever worsening health. An endless cycle of hospital admissions and deterioration. I want people to offer me gentle prayer for a smooth transition to what lies ahead and prayer for an easing of my pain and prayer for God/Higher power to watch over the family that I will leave behind.


Karen tells me that she is running out of steam, may not be able to correspond much longer.

You are a rare find, Miss Molly.
We had us some good times here on CT, didn't we?
Prayers that you are released from the shackles of pain; that you fly with the angels to the light that awaits you.
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

peanut_8
Posts: 2325
Joined: Sun May 25, 2014 1:31 pm

Re: Our Miss Molly/Karen going into hospice

Postby peanut_8 » Fri Jun 21, 2019 12:04 pm

Karen, you have left such a legacy here at Colon talk, always sharing so freely you extensive knowledge. You have helped so many including myself.

Bless you.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

User avatar
CRguy
Posts: 9956
Joined: Sun Feb 10, 2008 6:00 pm

Re: Our Miss Molly/Karen going into hospice

Postby CRguy » Fri Jun 21, 2019 2:57 pm

Sending prayers for a gentle crossing.

with Love Peace and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Our Miss Molly/Karen going into hospice

Postby LPL » Fri Jun 21, 2019 3:34 pm

I want you to always be here Miss Molly.
But that is just me being selfish :cry:
I truly want you to be free of pain and that is all I wish!
Again Thank you so much for all good advice/great knowledge that you have shared.to help me and all of us here.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

natelaugh
Posts: 52
Joined: Wed Apr 03, 2019 11:40 pm

Re: Our Miss Molly/Karen going into hospice

Postby natelaugh » Fri Jun 21, 2019 9:25 pm

Have Karen try alternative medication for pain management, such as cannabis?

nate.
Caregiver to 80M
DX:CC,RC,desc
11/2018 rightPain
1/19/19 scopy,path
1/23 CTscan
2/19 surgery
2/26-2/28 NGTube
2/28-3/14 TPN bc ileus
3/2 2nd surgeryCloseOpenWound
3/4-3/28 woundVac
size: 6cm Adenocarcinoma
grade Poorly
Stage IIIC T3N2aMx
PositiveLymph:5of28
BaselineCEA:68
LVI:Y
PNI:N
Surgical margins:clear
MSI:MMR (MLH1, MSH2, MSH6, PMS2) Intact nuclear expression
Lynch status:N
Laparascopic, partial colectomy
CEA:3/28/19 2.8
Chemo:4/16/19-9/17/19 5FU,12cycles,every 14days,leucoverin,zofran,Dexamethasone

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mobrouser
Posts: 145
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Our Miss Molly/Karen going into hospice

Postby mobrouser » Fri Jun 21, 2019 11:11 pm

Sometimes when I read someone's posts here I try to picture what they look like.
After reading so many of Miss Molly's I decided that she must be a modern version of Audrey Hepburn.
Gracious and strong and proud. But without the long gloves....

My thoughts are with you. Your journey in this life has presented many challenges, yet you choose to focus on providing positivity always. Thank you.
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

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Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Our Miss Molly/Karen going into hospice

Postby Maggie Nell » Sat Jun 22, 2019 10:35 am

Fly me high through the starry skies
Maybe to an astral plane
Cross the highways of fantasy
Help me to forget today's pain


https://www.youtube.com/watch?v=LgCWgfwlk0M
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh


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