Jolene wrote:How do you mean prepare for it to get worse before it's finished ? I'm left with 2 more cycles and will be using a new arm for that, I'm hoping nothing too bad will happen !!
I haven't been particularly struck with fatigue as yet except for the first 3-4 days after infusion. But yes, it's definitely a bitch to get thru but mostly mentally and psychologically for me though !
Jolene wrote:. . . I'm left with 2 more cycles and will be using a new arm for that, I'm hoping nothing too bad will happen !!
prs wrote:Jolene wrote:How do you mean prepare for it to get worse before it's finished ? I'm left with 2 more cycles and will be using a new arm for that, I'm hoping nothing too bad will happen !!
I haven't been particularly struck with fatigue as yet except for the first 3-4 days after infusion. But yes, it's definitely a bitch to get thru but mostly mentally and psychologically for me though !
Joene, my Xelox regime was eight cycles, three weeks per cycle, so with a couple of delays caused by low blood counts the whole thing lasted six months!
When I said prepare for it to get worse, I meant all the other side effects of the treatment, that for me kept increasing in intensity as the treatment progressed. Those side effects included nausea and throwing up, hand and foot syndrome, first bite lock jaw, extreme sensitivity to touching or eating anything cold, fatigue, very itchy upper body rash etc etc.
I know everybody experiences different side effects and at different levels, so hopefully you won't see too many of these!!
LeonW wrote:Jolene wrote:. . . I'm left with 2 more cycles and will be using a new arm for that, I'm hoping nothing too bad will happen !!
Why would you use a new arm for these final two cycles?
Knowing that chemo is hard on the veins, I carefully alternated left and right arms for each cycle. Gives them 6 weeks to recover!
Leon
Jolene wrote:Hi PRS - thanks for the heads up !!
Did you get booster jabs to avoid low blood count ? Mine's Nivestim - done on the 3rd/4th/5th day after infusion to keep the blood count going. It gives me random chest pains though during those booster jabs day but at least it has helped my blood count stay on the border line.
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