Temporary Ileostomy and Bowel Movements

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Deep
Posts: 35
Joined: Thu Nov 01, 2018 6:10 pm

Temporary Ileostomy and Bowel Movements

Postby Deep » Thu Jun 13, 2019 11:54 am

The other night I had a small bowel movement. A tiny bit of fecal matter was passed and when I wiped, the paper turned yellow. My wife thinks I should call my surgeon to ensure that it is not a complication, but I looked online and found that since my colon is still intact, it is possible to have a bowel movement with an ileostomy. What are the experiences from people on here? Is this something to worry about, or is it normal?
11/29/18 Diagnosed T3N1 Rectal Cancer (Age 39, Male, no family history)
01/02/19--02/7/19--- 25 rounds radiation/chemo (Capecitabine 2000 mg)
04/15/19 Surgery, temp ileostomy (Tumor Staged T2)
7/8/19-10/15/19 Chemo (8 Rounds) Folfox
11/12/19- Scan NED

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Green Tea
Posts: 202
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Temporary Ileostomy and Bowel Movements

Postby Green Tea » Thu Jun 13, 2019 3:01 pm

Deep wrote:The other night I had a small bowel movement. A tiny bit of fecal matter was passed and when I wiped, the paper turned yellow. My wife thinks I should call my surgeon to ensure that it is not a complication, but I looked online and found that since my colon is still intact, it is possible to have a bowel movement with an ileostomy. What are the experiences from people on here? Is this something to worry about, or is it normal?

I think it is possible to have "bowel movements" with an ileostomy, but these are mainly instances of coagulated blood left over from a recent surgery, or congealed mucous originating from normal colon-wall secretions. The latter is sometimes referred to as "mucoid plaque", not "fecal matter". In the first few weeks after surgery the colon is basically purging itself of various types of foreign matter in a sort of passive colon cleansing operation. That's my layman's interpretation, but you can check with your surgeon and see what he or she says.

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juliej
Posts: 3049
Joined: Thu Aug 05, 2010 12:59 pm

Re: Temporary Ileostomy and Bowel Movements

Postby juliej » Thu Jun 13, 2019 7:18 pm

Agree with Green Tea. It's possible to pass left-over bowel movements or mucous from your rectum after an ileostomy. The mucus can vary in consistency from thin and clear to opaque, thick stuff -- all of which are considered "normal."

This should decrease over time, so I wouldn't worry about it. But it's always good to mention it to your surgeon on your next visit.

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

Mrs E
Posts: 4
Joined: Tue Jun 18, 2019 9:38 pm

Re: Temporary Ileostomy and Bowel Movements

Postby Mrs E » Tue Jun 18, 2019 10:00 pm

Its normal. Prior to my reversal (had the ileostomy for 9 months) i would the feeling i had to go and my body would go thru the motions. Sometimes i would get poop sometimes mucous. The dr said it was probably “leftover” as the colon may not have been completely
Mom of 4 beautiful kids
2/2016 - diagnosed stage 3b cc
Surgery and ileostomy
6 months folfox and all the fun side effects
12/2016 - reversal of ileostomy
Clean scans so far and prayers for keeping them clean

Big Jay
Posts: 35
Joined: Fri Jun 17, 2016 5:41 pm
Location: Baltimore, MD

Re: Temporary Ileostomy and Bowel Movements

Postby Big Jay » Wed Jun 19, 2019 8:20 am

I too passed some mucous balls while my ileostomy was in place. Mentioned it to Doc and this is apparently quite common. Your colon will continue to produce mucous even w/o food in the system. Eventually it'll work its way to the end of the line.
DX at 45yo 6/9/16, 2.4cm tumor, 9cm from Anal Verge, 6/27/16
Clinical staging IIIC, CEA 3.1 7/1/16
30x Chemorad 8/5/16 - 9/16/16
CT/MRI/Scope => CCR 11/1/16... Rolling the dice on Watch & Wait
Snake Eyes: Tiny regrowth at scar 11/1/17
LAR 1/17/18: Path = 3mm tumor, 0/12 nodes Med Onc doesn't recommend chemo.
Reversal 4/17/18

NHMike
Posts: 2334
Joined: Fri Jul 21, 2017 3:43 am

Re: Temporary Ileostomy and Bowel Movements

Postby NHMike » Thu Jun 20, 2019 1:25 pm

I had this issue from time to time and it was generally caused by sleeping on my back. The small intestine is cut and bent back on the other side so material comes from the upper tube and goes into the bag. But it can go into the lower tube under the right circumstances such as the bag getting too full or the top of the bag lower than the bottom of the bag. My solution was to buy a memory foam triangle wedge to sleep on. This kept my upper body higher than my lower body so that waste wouldn't flow into the lower tube. I also regularly got up at 1-3 AM to empty the bag so that it wouldn't get too full.

Some mucous is normal but it didn't include fecal matter for me.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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