Another 6 months

Please feel free to read, share your thoughts, your stories and connect with others!
Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Another 6 months

Postby Gravelyguy » Tue Jun 11, 2019 10:46 pm

Back from Mayo and got the all clear and see you in 6 more months talk!

While I was there they asked if I would be part of a research project that is looking at a potential blood test that can detect recurrence or disease progression.

It is in the “discovery” stage so it could be years but I am glad to help out however I can.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Another 6 months

Postby Lee » Tue Jun 11, 2019 11:29 pm

Gravelyguy wrote:Back from Mayo . . .

While I was there they asked if I would be part of a research project that is looking at a potential blood test that can detect recurrence or disease progression.

It is in the “discovery” stage so it could be years but I am glad to help out however I can.

Dave


That sounds TOTALLY AWESOME, I hope you took them up on that offer!!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

lovelife789
Posts: 161
Joined: Thu Aug 24, 2017 5:28 am

Re: Another 6 months

Postby lovelife789 » Wed Jun 12, 2019 12:44 am

Congrats!!! So happy for you!!!
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild
3/17- 6/17 - 6 x FOLFOX + Erbitux
7/17 - 1st & 2nd Liver resec
9-12/17' - 13 x FOLFOX
1-6/18 - NED
6/18 - PET SCAN showed a 0.8mm lung nodule, VATs
8/18 - 4/19 - NED
5/19 - recurrence 1 x PALN, 1x common iliac
FOLFIRI + Avastin x 12 - complete response, SBRT
12/19-5/20 - NED
5/20 - recurrence in LNs, tiny liver spots x 2, W n W due to COVID
8/20 - LNs very slightly increased, liver stable, one new liver spot

kiwiinoz
Posts: 1170
Joined: Thu Jan 03, 2013 11:44 pm

Re: Another 6 months

Postby kiwiinoz » Wed Jun 12, 2019 1:08 am

Awesome, ain't it good to be told that you are NED for another 6 months as a stage IV patient? I was told I was boring by my oncologist which made me extremely happy. and I am waiting for you to get to the "see you in a year stage" mate
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015

Beckster
Posts: 438
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Another 6 months

Postby Beckster » Wed Jun 12, 2019 5:16 am

I think I am in the same research study....viewtopic.php?f=1&t=61686&p=487663#p487663
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20,12/21 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7 6/21 2.9,[color=#000000]12/21 2.7[/color]
Clear Colonoscopy 10/17, 11/19,11/21 :D

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Another 6 months

Postby Gravelyguy » Wed Jun 12, 2019 8:11 am

Lee wrote:
Gravelyguy wrote:Back from Mayo . . .

While I was there they asked if I would be part of a research project that is looking at a potential blood test that can detect recurrence or disease progression.

It is in the “discovery” stage so it could be years but I am glad to help out however I can.

Dave


That sounds TOTALLY AWESOME, I hope you took them up on that offer!!

Lee


Lee, I certainly did sign the consent forms. All it is is an extra blood draw every time I am back for scans so very easy. Anything I can do to help people that get this in the future!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Another 6 months

Postby mpbser » Wed Jun 12, 2019 8:15 am

Awesome!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Another 6 months

Postby Gravelyguy » Wed Jun 12, 2019 8:18 am

mpbser wrote:Awesome!


Thanks mpster,

It feels great!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Another 6 months

Postby Punky44 » Wed Jun 12, 2019 9:57 am

Yay! Awesome news!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Another 6 months

Postby LPL » Wed Jun 12, 2019 2:29 pm

Wonderful news! :D
And to be part of that research sounds great !
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Another 6 months

Postby AmyG » Wed Jun 12, 2019 2:49 pm

I'm so excited for you!!! I can't wait to get to that stage!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Butt
Posts: 41
Joined: Mon Mar 11, 2019 10:48 pm

Re: Another 6 months

Postby Butt » Wed Jun 12, 2019 4:39 pm

I would like it to but I don t know what should I do?

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Another 6 months

Postby juliej » Wed Jun 12, 2019 5:04 pm

AWESOME news, Dave! Congratulations!!! :D :D :D

I'm on 6-month CT scans and 3-month bloodwork, but I was a Stage IVB, which is probably why I have the extra labs. It never ceases to put a smile on my face thinking how far I've/we've come!

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Another 6 months

Postby DarknessEmbraced » Sat Jun 15, 2019 12:20 pm

Congratulations and that's wonderful! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 107 guests