Positive Cologuard testing?

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Beckster
Posts: 399
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Positive Cologuard testing?

Postby Beckster » Sun Jun 09, 2019 12:52 pm

I have a close friend that tested positive for the cologuard test. She does not like doctors and was to scared to go for a colonoscopy. Her GP finally got her to take the Cologuard test, which came back positive. Now she is in a panic and is scheduled for a colonoscopy on July 2nd. The doctor said that just because it came back positive, it does not mean that she has cancer. Cologuard is suppose to have a 92% accurancy rate? Do any of you know of people that took the Cologuard test, which came back positive and the outcome? You would think that after what I went through, she would have run for a colonoscopy 4 years ago!

Any information would be appreciated....
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6
Clear Colonoscopy 10/17, 11/19 :D

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Positive Cologuard testing?

Postby LPL » Sun Jun 09, 2019 1:47 pm

Beckster wrote:I have a close friend that tested positive for the cologuard test. She does not like doctors and was to scared to go for a colonoscopy. Her GP finally got her to take the Cologuard test, which came back positive. Now she is in a panic and is scheduled for a colonoscopy on July 2nd. The doctor said that just because it came back positive, it does not mean that she has cancer. Cologuard is suppose to have a 92% accurancy rate? Do any of you know of people that took the Cologuard test, which came back positive and the outcome? You would think that after what I went through, she would have run for a colonoscopy 4 years ago!

Any information would be appreciated....

Beckster, my husband (who is the one with CRC stage IV) has a sister who recently experienced the exact same thing. No symptoms but (due to age and brother with CRC) she took a test like Cologuard (don’t know the the name of the test she took - but it was positive for blood in faeces). She had the colonoscopy and everything came back clean (no hemorrhoid seen either) apart from 3 polyps that was removed - the doctor told her he was sure (due to how they looked) that it would be fine. Hubby & I have not heard anything about the pathology report yet but if it had been bad news we would have heard. This was approximately 2-3 weeks ago.
I hope your friend’s test will be OK!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

Beckster
Posts: 399
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Positive Cologuard testing?

Postby Beckster » Sun Jun 09, 2019 2:15 pm

LPL wrote:
Beckster wrote:I have a close friend that tested positive for the cologuard test. She does not like doctors and was to scared to go for a colonoscopy. Her GP finally got her to take the Cologuard test, which came back positive. Now she is in a panic and is scheduled for a colonoscopy on July 2nd. The doctor said that just because it came back positive, it does not mean that she has cancer. Cologuard is suppose to have a 92% accurancy rate? Do any of you know of people that took the Cologuard test, which came back positive and the outcome? You would think that after what I went through, she would have run for a colonoscopy 4 years ago!

Any information would be appreciated....

Beckster, my husband (who is the one with CRC stage IV) has a sister who recently experienced the exact same thing. No symptoms but (due to age and brother with CRC) she took a test like Cologuard (don’t know the the name of the test she took - but it was positive for blood in faeces). She had the colonoscopy and everything came back clean (no hemorrhoid seen either) apart from 3 polyps that was removed - the doctor told her he was sure (due to how they looked) that it would be fine. Hubby & I have not heard anything about the pathology report yet but if it had been bad news we would have heard. This was approximately 2-3 weeks ago.
I hope your friend’s test will be OK!


Thanks for the info LPL! Cologuard tests DNA, so I wonder if it is the type of test.
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6
Clear Colonoscopy 10/17, 11/19 :D

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Positive Cologuard testing?

Postby LPL » Mon Jun 10, 2019 4:09 am

Beckster, I will try to find out the name of the test she did.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

User avatar
susie0915
Posts: 941
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Positive Cologuard testing?

Postby susie0915 » Mon Jun 10, 2019 7:48 am

This is how my cancer was found. I had seen blood a couple times on my stool but not often. I was sure it was my hemorrhoids. My doctor gave me the test and it was positive. The sample I made sure the sample I sent in did not have any visible blood. I had a clean colonoscopy 5 years before. I was immediately referred to a GI and scheduled a colonoscopy. Came back stage 2A rectal cancer. I was told it had probably been there 5 years and my previous colonoscopy either missed it because it was too small or just began forming right after. That was 4 years ago and I have been NED for over 3 1/2 years.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

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Green Tea
Posts: 202
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Positive Cologuard testing?

Postby Green Tea » Mon Jun 10, 2019 1:57 pm


texazgal
Posts: 147
Joined: Fri Sep 28, 2007 4:40 pm
Location: central Texas

Re: Positive Cologuard testing?

Postby texazgal » Fri Jun 14, 2019 11:02 am

Green Tea:

Thanks for posting that link. I forwarded it to my youngest brother who tested positive for cancer recently and he just got back to me with a "that was a much better explaination than the Dr gave him. He is getting a scope the 27th June. Hoping he isn't going to join this club.:(
DX rectal cancer Aug 04
Surgery Sept 04, perm ostomy, "BarbieButt" Sept 23, 04.
Dad passed '93 CC
Gdad cc '68, uncle cc '69 too much CC in fam
DD 42 yo/w/2 polyps removed


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