Thanks, Jannine. We got home yesterday. My husband thankfully can work out of home this week and is going to be sleeping as much as he possibly needs so he fully recovers. He had not had a good full night's sleep in over a week.
I have been following another case of catheter dislodge that is currently going on at MSK with another patient of Dr. DA's. His pump is implanted in the same place as my husband's. Last week, after four FUDR treatments, he became symptomatic of bleeding just like my husband. By endoscopy, it was discovered that the catheter was causing an ulcer in his stomach because the catheter had dislodged from the pump end. He happened to already be scheduled for liver surgery yesterday as he currently has a number of liver mets. When they went in, it was discovered that the loose catheter was also causing a bleed in the back wall of the duodenum. They removed the pump and also placed a stent in his hepatic artery (just like my husband) as a precautionary measure to avoid a pseudo-aneurysm (like my husband had).
I had messaged Dr. K and DA's teams through the portal on May 16th, while my husband was in the MSK ICU, after Dr. DA was talking about leaving the pump in there and my husband starting chemo in "two weeks": "Dead pumps left in bodies are almost always connected to the artery - I don’t like the idea of the catheter floating around in there where his small intestines are. That just sounds too risky."
We were told that my husband has a follow-up appointment with Dr. DA on Monday, the 27th, which is noted on his discharge paperwork. We got a call early yesterday morning from one of his nurses who said that they wanted repeat bloodwork this week. We informed her that it had already been done, per Dr. K, and results are in the portal. The nurse was going to call us back but didn't yet.
In the meantime, I am planning on calling a liver surgeon in Albany we consulted with when choosing between him, a local surgeon who operated on a friend of ours, and MGH a couple years ago for my husband's first liver surgery. If MSK is going to take too long for our liking to get him in for surgery to remove the pump and catheter, I want a back up plan.
Wife 4/17 Dx age 45
5 x 4 x 1 cm
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
Lynch no; KRAS wild
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death