Scared

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Joeswife
Posts: 3
Joined: Wed May 15, 2019 6:11 pm
Facebook Username: Elviramed

Scared

Postby Joeswife » Wed May 15, 2019 6:28 pm

First time logging in. My husband was diagnosed in May 2017 with stage 4 colon cancer and innumerable liver mets. Colon was resectioned and tumor was removed and fixed a hernia with a mesh. Oncologist started him on Cetuximab and 5-fu worked for a few months then stopped working. Next we tried Avastin, again stopped working. The last one we tired was cyramza with 5-fu. It caused him to have a partial bowel obstruction which they couldn't operate because of cancer. A week later another bowel obstruction. Long story short he was sent him on hospice. Not eligible for chemo anymore is what oncologist said. My husband has given up, lost so much weight and barely eats because of bowel obstruction. Lactalose isn't working. Hasn't gone poop in 6 days. I wanted him to continue fighting, I'm sad and scared. I'm sure I forgot to mention other stuff but just needed to vent. :|

martd
Posts: 112
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: Scared

Postby martd » Thu May 16, 2019 9:04 am

Has the doc mentioned trying a stent to relieve the blockage? Have you tried a second opinion?
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT Tp53 LOF
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

Joeswife
Posts: 3
Joined: Wed May 15, 2019 6:11 pm
Facebook Username: Elviramed

Re: Scared

Postby Joeswife » Thu May 16, 2019 4:04 pm

The doctor didn't suggest a stent. They just sent him home with hospice. The hospice nurses are very helpful though. Today the administered an enema and it seemed to work a little. We haven't gone for a second opinion. Since he is on Hospice, everything has to go through them now. If we want a second opinion we have to get out of hospice.

martd
Posts: 112
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: Scared

Postby martd » Fri May 17, 2019 9:06 am

A stent can be used as a palliative measure, maybe call his doctor and ask about it? Try calling his surgeon also. I'm sorry he is going through this but it sounds like he is being well taken care of by the nurses. Wishing you the best

Dan
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT Tp53 LOF
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

Joeswife
Posts: 3
Joined: Wed May 15, 2019 6:11 pm
Facebook Username: Elviramed

Re: Scared

Postby Joeswife » Fri May 17, 2019 10:01 am

Thank you Dan. I will ask the doctor. Thank you for the information.


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