FightCRC wrote:. It's sadly incumbent upon patients/caregivers to be aware of their situation, and all available [EVIDENCE BASED] treatment options. I wish you the best.
There I fixed/clarified it (in bold).
A good place to start with understanding treatment options are: NCCN guidelines, up-to-date, and onclive.com.
To a degree, yes. But what's the medical establishment's view on medicinal cannabis, for example? Both of our oncologists knew/know very little about it, and as a result, discouraged its use.
To be clear, I'm agnostic (at best) on any alleged curative properties. But it's been crucial in helping us manage side effects, which in turn, allows us to better tolerate conventional treatment.
I have to say, I've received much more practical knowledge and advice from fellow patients/caregivers, than from doctors. "Listen to your doctors" as a general principle? Eh...depends. As an absolute? Well, if we listened to our first onc, we very well might not still be here. If you're a passive patient, then follow the path of least resistance and listen to your doctors, always. IMO, however, a patient simply cannot afford to be passive, especially at Stage IV. Research, research, research. Best of luck to all of us.