Stage IV 8 year cancerversary today AND clean scan

Please feel free to read, share your thoughts, your stories and connect with others!
mymom
Posts: 1269
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Stage IV 8 year cancerversary today AND clean scan

Postby mymom » Mon May 13, 2019 7:06 pm

On May 13, 2011 mom was diagnosed with Stage 4 cancer. Today was her 8 year anniversary, and she had another clean scan. Great anniversary gift. This makes a bit over 3.5 years clean in her longest remission yet. She had remissions on and off but October 2015 we started having continuous clean scans and here we are in 2019. In May 2012 she also had stage 1 breast and that is fine. HOPE. Thinking of you all. She is kicking butt. Living the good life. Family trip to Hawaii in August coming up- bucket list.

Lisa
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

User avatar
CRguy
Posts: 9971
Joined: Sun Feb 10, 2008 6:00 pm

Re: Stage IV 8 year cancerversary today AND clean scan

Postby CRguy » Mon May 13, 2019 11:08 pm

mymom wrote: HOPE. Thinking of you all. She is kicking butt. Living the good life. Family trip to Hawaii in August coming up- bucket list.
Lisa


DAMN ... good news all around !!!!!

If Kauai is in the "bucket" ... I am IN :mrgreen:

seriously ALL the best wishes for continued success MOM !!!!

Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

stu
Posts: 1183
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage IV 8 year cancerversary today AND clean scan

Postby stu » Tue May 14, 2019 1:42 am

Excellent news . Hope you all have a wonderful time .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

tater
Posts: 109
Joined: Wed Jul 19, 2017 5:53 pm

Re: Stage IV 8 year cancerversary today AND clean scan

Postby tater » Tue May 14, 2019 5:04 pm

Such great news to hear.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18

Deb m
Posts: 502
Joined: Tue Jan 14, 2014 10:08 am

Re: Stage IV 8 year cancerversary today AND clean scan

Postby Deb m » Wed May 15, 2019 9:18 am

So happy to hear great success stories.

hart2hart
Posts: 789
Joined: Wed Nov 23, 2011 10:46 pm

Re: Stage IV 8 year cancerversary today AND clean scan

Postby hart2hart » Thu May 16, 2019 10:04 pm

Hi Lisa and Mom!
FANTASTIC News! Pete is right behind you!
November 2011.....It was a very tough journey as you know but WOW! Looking forward to seeing ya’al’ in September for honoring Dr Kemeny for all she’s done with her pump research! See you at the Walk/Festival!
Can’t wait to see Kathy/George from CC as well!


Julie and Pete
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - To Current

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Stage IV 8 year cancerversary today AND clean scan

Postby LPL » Fri May 17, 2019 11:52 am

Lisa,
Thank you so much for returning here to share your good news!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

boxhill
Posts: 336
Joined: Fri Apr 06, 2018 11:40 am

Re: Stage IV 8 year cancerversary today AND clean scan

Postby boxhill » Sun May 19, 2019 12:52 pm

Fabulous news! Hope many of us, including me, can live up to her example. :D
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

fumaros
Posts: 265
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Stage IV 8 year cancerversary today AND clean scan

Postby fumaros » Sun May 19, 2019 5:07 pm

Congratulations. That is amazing news.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

mymom
Posts: 1269
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Stage IV 8 year cancerversary today AND clean scan

Postby mymom » Sun May 19, 2019 9:01 pm

Thanks for all the kind thoughts!
I can only hope at 72 I have as much energy as my mom. She spent the day yesterday and today cleaning up their property with my dad and my 13 year old son. She was dragging tree limbs. I get tired watching her- lol!
Looking forward to seeing Pete and you all in September!
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

Mohrfamily
Posts: 152
Joined: Tue May 22, 2018 4:04 pm

Re: Stage IV 8 year cancerversary today AND clean scan

Postby Mohrfamily » Mon May 20, 2019 4:46 am

I love seeing stories like this. This forum has already given me so much hope for my husband.

Thank your for sharing and huge congrats
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

MSKfan
Posts: 3
Joined: Thu Jun 28, 2018 2:42 pm

Re: Stage IV 8 year cancerversary today AND clean scan

Postby MSKfan » Thu Jun 13, 2019 5:42 pm

What is the event in a September honoring Dr Kemeny? Thanks.

fumaros
Posts: 265
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Stage IV 8 year cancerversary today AND clean scan

Postby fumaros » Sun Jun 16, 2019 6:18 pm

Congratulations, that is amazing news.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

jmn
Posts: 48
Joined: Sat Aug 11, 2018 8:20 pm
Location: New York/Philadelphia

Re: Stage IV 8 year cancerversary today AND clean scan

Postby jmn » Sun Jul 21, 2019 12:00 am

Wonderful news indeed! Congratulations!
DX: CC, 7-9-18 @ age 61, male
Severe anemia (4.5 g/dl), 5-11-18; colonoscopy, 6-29-18
Lap-assisted right hemicolectomy, 7-16-18
G2, moderately differentiated adenocarcinoma in cecum, 4.2 x 3.7 x 0.7 cm
Stage IIB, pT4aN0 (first pathology DX: pT3N0)
0/24 lymph nodes, LVI present, PNI present, surgical margins clear, MSS
CEA: 3.0 (pre-op, 7-10-18); 0.7 (post-op, 8-8-18)
TX: Xeloda (capecitabine) monotherapy, 10-16-18 to 4-21-19
CEA: 4-19, 3.4; 5-19, 3.0; 7-19, 3.0
NED: 5-28-19 :D
Clear colonoscopy, 7-15-19 :D

k0chr
Posts: 20
Joined: Wed Jun 05, 2019 5:08 pm

Re: Stage IV 8 year cancerversary today AND clean scan

Postby k0chr » Sun Jul 21, 2019 6:13 pm

Great news, Lisa. Thank you for sharing and spreading hope.
DX: 54
05/24/19 DX: CC rectosigmoid adenocarcinoma
06/07/19: laparascopic
5.8cm tumor, clear margins
G2 IIIA T2N1AM0
1/10 positive
07/08/19: starting FOLFOX, 12 cycles
08/14/19: gallbladder removed
08/19/19: DVT left internal jugular vein, subclavian, & axillary veins, daily Lovenox injections


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Amarie123 and 52 guests