Postby Caat55 » Mon Apr 22, 2019 11:22 am
It is strange how much better daytime is then night. Maybe I relax, or horizontal position gets things moving because 7 trips to toilet in 4 hours. It feels like a lot comes out but just tiny bit. I am trying to be busy during day, avoiding pain pills they sent home with me, sticking with Tylenol. Sluggish this morning but don’t want to stay in bed. I had a small cup of coffee to avoid caffeine withdrawal. I am beginning a notebook with what I ate, drink, pooped, exercise to look for patterns.
A burger, taco, fries sound good. We had a party at our winery, stopped in for a while. I didn’t drink but a few sips of wine, stuck to water, kombucha.
First day home alone, what to do, what to do? Adele I have no patience either.
S
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20