Am about to start my 3rd Xelox cycle and have a question regarding infusion time !
In my 1st cycle , I was given a 2 hour IV oxy infusion and didn't felt much pain or tenderness on my arm during that 2 hours. I left the hospital feeling quite okay and the tenderness/pain was felt only when I got home. I couldn't even squeeze a toothpaste or open a jar for about 2 days. It was not fun but I managed. After that, the pain was gone for the rest of the 3 weeks. The tenderness was intense but it was short.
In my 2nd cycle, as per a number of you advised to discuss a longer infusion time. I was given a 4 hour IV infusion this round. However, pain started to set in about 2 hours after the infusion... by the 3rd and 4th hour, I needed a heat pack to relieve the arm. I left the hospital with my arm feeling numbed, not so much of a pain. It was like an intense pins and needles sensation if anyone was was to bump into my arm. Strangely, because it was not so much of pain sensation I could open up jars or squeeze my toothpaste on the same day I got home. This arm numbing sensation lasted for about a week or so and I had to be very cautious about who brushes against me for that whole week. The pins and needles sensation was manageable but it was prolonged into a week instead. Now, my question is should I revert back to 2 hours or continue to stay at 4 hours ?
Time is not an issue as I usually just head home to rest on infusion day. .
When I did my 1st cycle, i didn't have to use any heat pack while infusing but instead the tenderness was intense for 2 days and then gone for the rest of the weeks. The tenderness was intense but short and sweet.
My 2nd cycle of 4 hours seemed to have somehow prolonged the pain into the 3rd/4th hour while infusing, but instead of pain after the infusion I experienced pins and needles sensation for longer than 2 days ! It continued into a week !
Saying all that, I understand that it's accumulative but with only 2 cycles so far... I can't quite figure out any pattern as yet. Should I go back to 2 hours or stay at 4 hours ?
Any thoughts and experience to share ?